TY - JOUR
T1 - When Family Life Contributes to Cancer Caregiver Burden in Palliative Care
AU - Benson, Jacquelyn J.
AU - Washington, Karla T.
AU - Landon, Olivia J.
AU - Chakurian, Daphne E.
AU - Demiris, George
AU - Parker Oliver, Debra
N1 - Publisher Copyright:
© The Author(s) 2023.
PY - 2023/8
Y1 - 2023/8
N2 - The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver’s social network—especially other family—is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: failed support, relational tensions, denial, and additional care work. Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.
AB - The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver’s social network—especially other family—is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: failed support, relational tensions, denial, and additional care work. Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.
KW - cancer
KW - caregiver
KW - caregiver burden
KW - family life
KW - palliative care
KW - social support
UR - http://www.scopus.com/inward/record.url?scp=85161649300&partnerID=8YFLogxK
U2 - 10.1177/10748407231167545
DO - 10.1177/10748407231167545
M3 - Article
C2 - 37190779
AN - SCOPUS:85161649300
SN - 1074-8407
VL - 29
SP - 275
EP - 287
JO - Journal of Family Nursing
JF - Journal of Family Nursing
IS - 3
ER -