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Validity of participant-reported diagnoses in an online patient registry: A report from the NF1 Patient Registry Initiative
Evelyn K. Sharkey, Nancy L. Zoellner, Salmafatima Abadin, David H. Gutmann, Kimberly J. Johnson
- Roy and Diana Vagelos Division of Biology & Biomedical Sciences (DBBS)
- Institute of Clinical and Translational Sciences (ICTS)
- Neurofibromatosis (NF) Center
- Siteman Cancer Center
- Bursky Center for Human Immunology & Immunotherapy Programs (CHiiPs)
- Center of Regenerative Medicine
- DBBS - Neurosciences
- Section of General Pediatric Neurology
- DBBS - Developmental, Regenerative and Stem Cell Biology
- DBBS - Molecular Genetics and Genomics
- DBBS - Cancer Biology
- Hope Center for Neurological Disorders
- Brain Tumor Center
- Intellectual and Developmental Disabilities Research Center (IDDRC)
Research output: Contribution to journal › Article › peer-review
14
Scopus
citations