Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA

Roshni Kulkarni; K. P. Ponder; A. H. James; J. M. Soucie; M. Koerper; W. K. Hoots; J. M. Lusher

doi:10.1111/j.1365-2516.2006.01277.x

Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA

Roshni Kulkarni, K. P. Ponder, A. H. James, J. M. Soucie, M. Koerper, W. K. Hoots, J. M. Lusher

Division of Hematology

Research output: Contribution to journal › Review article › peer-review

38 Scopus citations

Abstract

Haemophilia and inherited bleeding disorders in newborns and their carrier mothers pose unique challenges. The pattern of bleeding and the causes and risk factors for bleeding are decidedly different than an older child or an adult with haemophilia/inherited bleeding disorder. This document outlines the needs for further research and education, summarizes the state of the art background information and provides guidance regarding research, education and access to care issues in this population.

Original language	English
Pages (from-to)	205-211
Number of pages	7
Journal	Haemophilia
Volume	12
Issue number	3
DOIs	https://doi.org/10.1111/j.1365-2516.2006.01277.x
State	Published - May 2006

Keywords

Bleeding
Carrier
Haemophilia
Intracranial hemorrhage
Neonatal
Pregnancy

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Kulkarni, R., Ponder, K. P., James, A. H., Soucie, J. M., Koerper, M., Hoots, W. K., & Lusher, J. M. (2006). Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA. Haemophilia, 12(3), 205-211. https://doi.org/10.1111/j.1365-2516.2006.01277.x

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abstract = "Haemophilia and inherited bleeding disorders in newborns and their carrier mothers pose unique challenges. The pattern of bleeding and the causes and risk factors for bleeding are decidedly different than an older child or an adult with haemophilia/inherited bleeding disorder. This document outlines the needs for further research and education, summarizes the state of the art background information and provides guidance regarding research, education and access to care issues in this population.",

keywords = "Bleeding, Carrier, Haemophilia, Intracranial hemorrhage, Neonatal, Pregnancy",

author = "Roshni Kulkarni and Ponder, {K. P.} and James, {A. H.} and Soucie, {J. M.} and M. Koerper and Hoots, {W. K.} and Lusher, {J. M.}",

year = "2006",

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Kulkarni, R, Ponder, KP, James, AH, Soucie, JM, Koerper, M, Hoots, WK & Lusher, JM 2006, 'Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA', Haemophilia, vol. 12, no. 3, pp. 205-211. https://doi.org/10.1111/j.1365-2516.2006.01277.x

Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA. / Kulkarni, Roshni; Ponder, K. P.; James, A. H. et al.
In: Haemophilia, Vol. 12, No. 3, 05.2006, p. 205-211.

Research output: Contribution to journal › Review article › peer-review

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T2 - A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA

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AU - Ponder, K. P.

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AU - Soucie, J. M.

AU - Koerper, M.

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AB - Haemophilia and inherited bleeding disorders in newborns and their carrier mothers pose unique challenges. The pattern of bleeding and the causes and risk factors for bleeding are decidedly different than an older child or an adult with haemophilia/inherited bleeding disorder. This document outlines the needs for further research and education, summarizes the state of the art background information and provides guidance regarding research, education and access to care issues in this population.

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Kulkarni R, Ponder KP, James AH, Soucie JM, Koerper M, Hoots WK et al. Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA. Haemophilia. 2006 May;12(3):205-211. doi: 10.1111/j.1365-2516.2006.01277.x

Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A white paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA

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Keywords

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