Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation

Neonatal Seizure Registry; Renée A. Shellhaas; Monica E. Lemmon; Brian N. Gosselin; Julie Sturza; Linda S. Franck; Hannah C. Glass; Nicholas S. Abend; Tayyba Anwar; Giulia M. Benedetti; Madison Berl; Catherine J. Chu; Shavonne L. Massey; Charles E. McCulloch; Adam L. Numis; Elizabeth E. Rogers; Janet S. Soul; Cameron Thomas; Courtney J. Wusthoff

doi:10.1016/j.pediatrneurol.2023.04.019

Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation

Neonatal Seizure Registry, Renée A. Shellhaas, Monica E. Lemmon, Brian N. Gosselin, Julie Sturza, Linda S. Franck, Hannah C. Glass, Nicholas S. Abend, Tayyba Anwar, Giulia M. Benedetti, Madison Berl, Catherine J. Chu, Shavonne L. Massey, Charles E. McCulloch, Adam L. Numis, Elizabeth E. Rogers, Janet S. Soul, Cameron Thomas, Courtney J. Wusthoff

Research output: Contribution to journal › Article › peer-review

5 Scopus citations

Original language	English
Pages (from-to)	107-109
Number of pages	3
Journal	Pediatric Neurology
Volume	144
DOIs	https://doi.org/10.1016/j.pediatrneurol.2023.04.019
State	Published - Jul 2023

Keywords

Clinical Research
Diversity
Equity
Inclusion
Neonatal Seizures
Neurodevelopment
Study Design

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10.1016/j.pediatrneurol.2023.04.019

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Neonatal Seizure Registry, Shellhaas, R. A., Lemmon, M. E., Gosselin, B. N., Sturza, J., Franck, L. S., Glass, H. C., Abend, N. S., Anwar, T., Benedetti, G. M., Berl, M., Chu, C. J., Massey, S. L., McCulloch, C. E., Numis, A. L., Rogers, E. E., Soul, J. S., Thomas, C., & Wusthoff, C. J. (2023). Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation. Pediatric Neurology, 144, 107-109. https://doi.org/10.1016/j.pediatrneurol.2023.04.019

@article{a8329172acf544f49ad0f9c352f74a6d,

title = "Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation",

keywords = "Clinical Research, Diversity, Equity, Inclusion, Neonatal Seizures, Neurodevelopment, Study Design",

author = "{Neonatal Seizure Registry} and Shellhaas, {Ren{\'e}e A.} and Lemmon, {Monica E.} and Gosselin, {Brian N.} and Julie Sturza and Franck, {Linda S.} and Glass, {Hannah C.} and Abend, {Nicholas S.} and Tayyba Anwar and Benedetti, {Giulia M.} and Madison Berl and Chu, {Catherine J.} and Massey, {Shavonne L.} and McCulloch, {Charles E.} and Numis, {Adam L.} and Rogers, {Elizabeth E.} and Soul, {Janet S.} and Cameron Thomas and Wusthoff, {Courtney J.}",

note = "Funding Information: Funding/support: PyCORI (2015C2-1507-31187) and NIH (NS111166) supported this work. Author contributions: Drs. Shellhaas and Glass have full access to all the data in the study and take responsibility for the integrity of the data and the accuracy of the data analysis. Drs. Glass and Shellhaas are the co-primary investigators of the listed PCORI contract and National Institutes of Health grant. Shellhaas, Lemmon, Gosselin, Franck, and Glass contributed to concept and design. Glass, Soul, Chang, Wusthoff, Chu, Massey, Abend, Lemmon, Thomas, Numis, Sturza, McNamara, Rogers, McCulloch, and Shellhaas contributed to acquisition, analysis, or interpretation of data. Shellhaas, Lemmon, Franck, and Glass drafted the manuscript. All authors contributed to critical revision of the manuscript for important intellectual content. Sturza performed statistical analysis. Shellhaas and Glass obtained funding. Role of the funder/sponsor: The funding organizations had no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; preparation, review, or approval of the manuscript; and decision to submit the manuscript for publication. Funding Information: Author contributions: Drs. Shellhaas and Glass have full access to all the data in the study and take responsibility for the integrity of the data and the accuracy of the data analysis. Drs. Glass and Shellhaas are the co-primary investigators of the listed PCORI contract and National Institutes of Health grant. Shellhaas, Lemmon, Gosselin, Franck, and Glass contributed to concept and design. Glass, Soul, Chang, Wusthoff, Chu, Massey, Abend, Lemmon, Thomas, Numis, Sturza, McNamara, Rogers, McCulloch, and Shellhaas contributed to acquisition, analysis, or interpretation of data. Shellhaas, Lemmon, Franck, and Glass drafted the manuscript. All authors contributed to critical revision of the manuscript for important intellectual content. Sturza performed statistical analysis. Shellhaas and Glass obtained funding. ",

year = "2023",

month = jul,

doi = "10.1016/j.pediatrneurol.2023.04.019",

language = "English",

volume = "144",

pages = "107--109",

journal = "Pediatric Neurology",

issn = "0887-8994",

}

Neonatal Seizure Registry, Shellhaas, RA, Lemmon, ME, Gosselin, BN, Sturza, J, Franck, LS, Glass, HC, Abend, NS, Anwar, T, Benedetti, GM, Berl, M, Chu, CJ, Massey, SL, McCulloch, CE, Numis, AL, Rogers, EE, Soul, JS, Thomas, C & Wusthoff, CJ 2023, 'Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation', Pediatric Neurology, vol. 144, pp. 107-109. https://doi.org/10.1016/j.pediatrneurol.2023.04.019

TY - JOUR

T1 - Toward Equity in Research Participation

T2 - Association of Financial Impact With In-Person Study Participation

AU - Neonatal Seizure Registry

AU - Shellhaas, Renée A.

AU - Lemmon, Monica E.

AU - Gosselin, Brian N.

AU - Sturza, Julie

AU - Franck, Linda S.

AU - Glass, Hannah C.

AU - Abend, Nicholas S.

AU - Anwar, Tayyba

AU - Benedetti, Giulia M.

AU - Berl, Madison

AU - Chu, Catherine J.

AU - Massey, Shavonne L.

AU - McCulloch, Charles E.

AU - Numis, Adam L.

AU - Rogers, Elizabeth E.

AU - Soul, Janet S.

AU - Thomas, Cameron

AU - Wusthoff, Courtney J.

N1 - Funding Information: Funding/support: PyCORI (2015C2-1507-31187) and NIH (NS111166) supported this work. Author contributions: Drs. Shellhaas and Glass have full access to all the data in the study and take responsibility for the integrity of the data and the accuracy of the data analysis. Drs. Glass and Shellhaas are the co-primary investigators of the listed PCORI contract and National Institutes of Health grant. Shellhaas, Lemmon, Gosselin, Franck, and Glass contributed to concept and design. Glass, Soul, Chang, Wusthoff, Chu, Massey, Abend, Lemmon, Thomas, Numis, Sturza, McNamara, Rogers, McCulloch, and Shellhaas contributed to acquisition, analysis, or interpretation of data. Shellhaas, Lemmon, Franck, and Glass drafted the manuscript. All authors contributed to critical revision of the manuscript for important intellectual content. Sturza performed statistical analysis. Shellhaas and Glass obtained funding. Role of the funder/sponsor: The funding organizations had no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; preparation, review, or approval of the manuscript; and decision to submit the manuscript for publication. Funding Information: Author contributions: Drs. Shellhaas and Glass have full access to all the data in the study and take responsibility for the integrity of the data and the accuracy of the data analysis. Drs. Glass and Shellhaas are the co-primary investigators of the listed PCORI contract and National Institutes of Health grant. Shellhaas, Lemmon, Gosselin, Franck, and Glass contributed to concept and design. Glass, Soul, Chang, Wusthoff, Chu, Massey, Abend, Lemmon, Thomas, Numis, Sturza, McNamara, Rogers, McCulloch, and Shellhaas contributed to acquisition, analysis, or interpretation of data. Shellhaas, Lemmon, Franck, and Glass drafted the manuscript. All authors contributed to critical revision of the manuscript for important intellectual content. Sturza performed statistical analysis. Shellhaas and Glass obtained funding.

PY - 2023/7

Y1 - 2023/7

KW - Clinical Research

KW - Diversity

KW - Equity

KW - Inclusion

KW - Neonatal Seizures

KW - Neurodevelopment

KW - Study Design

UR - http://www.scopus.com/inward/record.url?scp=85160107529&partnerID=8YFLogxK

U2 - 10.1016/j.pediatrneurol.2023.04.019

DO - 10.1016/j.pediatrneurol.2023.04.019

M3 - Article

C2 - 37224576

AN - SCOPUS:85160107529

SN - 0887-8994

VL - 144

SP - 107

EP - 109

JO - Pediatric Neurology

JF - Pediatric Neurology

ER -

Toward Equity in Research Participation: Association of Financial Impact With In-Person Study Participation

Keywords

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