TY - JOUR
T1 - The Impact of Caring for Children With Severe Neurological Impairment on Clinicians
AU - Bogetz, Jori F.
AU - Trowbridge, Amy
AU - Jonas, Danielle
AU - Root, Maggie C.
AU - Mullin, Jonathan
AU - Hauer, Julie
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Funding for this work and Dr Jori Bogetz is supported, in part, by the Clinical Research Scholars Program within the Center for Clinical and Translational Research at Seattle Children’s Research Institute. The opinions herein are those of the authors and do not necessarily represent those of the funders.
Publisher Copyright:
© The Author(s) 2022.
PY - 2022/10
Y1 - 2022/10
N2 - Clinicians face many challenges in caring for children with severe neurological impairment (SNI). This study aimed to understand expert clinician perspectives on the personal impact of caring for children with SNI to highlight the challenges and potential solutions by underscoring the aspects of care that can be sustaining. Twenty-five clinicians participated including physicians (n = 8, 32%), social workers (n = 5, 20%), nurses/nurse practitioners (n = 5, 20%), case managers (n = 3, 12%), developmental therapists (n = 2, 8%), and other psychosocial clinicians (n = 2, 8%). Clinicians represented a variety of specialties including complex care/hospitalists (n = 10, 19%), palliative care (n = 7, 13%), and critical care (n = 6, 12%). Thematic content analysis revealed 3 major themes: (1) worries and challenges; (2) positive impact from being present; and (3) personal growth and meaning-making. Many clinicians described the ways listening, examining biases, learning about family perspectives, and normalizing the need for emotional processing helped them to understand their patients, families, and themselves more deeply.
AB - Clinicians face many challenges in caring for children with severe neurological impairment (SNI). This study aimed to understand expert clinician perspectives on the personal impact of caring for children with SNI to highlight the challenges and potential solutions by underscoring the aspects of care that can be sustaining. Twenty-five clinicians participated including physicians (n = 8, 32%), social workers (n = 5, 20%), nurses/nurse practitioners (n = 5, 20%), case managers (n = 3, 12%), developmental therapists (n = 2, 8%), and other psychosocial clinicians (n = 2, 8%). Clinicians represented a variety of specialties including complex care/hospitalists (n = 10, 19%), palliative care (n = 7, 13%), and critical care (n = 6, 12%). Thematic content analysis revealed 3 major themes: (1) worries and challenges; (2) positive impact from being present; and (3) personal growth and meaning-making. Many clinicians described the ways listening, examining biases, learning about family perspectives, and normalizing the need for emotional processing helped them to understand their patients, families, and themselves more deeply.
KW - burnout
KW - disability
KW - education
KW - palliative care
KW - pediatric
KW - workforce
UR - http://www.scopus.com/inward/record.url?scp=85131101116&partnerID=8YFLogxK
U2 - 10.1177/00099228221099135
DO - 10.1177/00099228221099135
M3 - Article
C2 - 35610773
AN - SCOPUS:85131101116
SN - 0009-9228
VL - 61
SP - 707
EP - 716
JO - Clinical Pediatrics
JF - Clinical Pediatrics
IS - 10
ER -