The Impact of Caring for Children With Severe Neurological Impairment on Clinicians

Jori F. Bogetz, Amy Trowbridge, Danielle Jonas, Maggie C. Root, Jonathan Mullin, Julie Hauer

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

Clinicians face many challenges in caring for children with severe neurological impairment (SNI). This study aimed to understand expert clinician perspectives on the personal impact of caring for children with SNI to highlight the challenges and potential solutions by underscoring the aspects of care that can be sustaining. Twenty-five clinicians participated including physicians (n = 8, 32%), social workers (n = 5, 20%), nurses/nurse practitioners (n = 5, 20%), case managers (n = 3, 12%), developmental therapists (n = 2, 8%), and other psychosocial clinicians (n = 2, 8%). Clinicians represented a variety of specialties including complex care/hospitalists (n = 10, 19%), palliative care (n = 7, 13%), and critical care (n = 6, 12%). Thematic content analysis revealed 3 major themes: (1) worries and challenges; (2) positive impact from being present; and (3) personal growth and meaning-making. Many clinicians described the ways listening, examining biases, learning about family perspectives, and normalizing the need for emotional processing helped them to understand their patients, families, and themselves more deeply.

Original languageEnglish
Pages (from-to)707-716
Number of pages10
JournalClinical Pediatrics
Volume61
Issue number10
DOIs
StatePublished - Oct 2022

Keywords

  • burnout
  • disability
  • education
  • palliative care
  • pediatric
  • workforce

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