TY - JOUR
T1 - Testing of a tethered personal health record framework for early end-of-life discussions
AU - Bose-Brill, Seuli
AU - Kretovics, Matthew
AU - Ballenger, Taylor
AU - Modan, Gabriella
AU - Lai, Albert
AU - Belanger, Lindsay
AU - Koesters, Stephen
AU - Pressler-Vydra, Taylor
AU - Holloman, Christopher
AU - Wills, Celia
N1 - Funding Information:
The authors would like to thank the following individuals for their support over the course of the study: Barbara Longo, Patricia Strickland, and Ann Henry, of OSU Internal Medicine and Pediatrics Grandview for their administrative support of the project; Rose Hallarn of OSU Center for Clinical and Translational Science for her assistance with participant recruitment strategies; Peter Embi, MD, MS, FACP, FACMI, vice chair of the Department of Biomedical Informatics at the Ohio State University, for his advising on managing an Epic-based interdisciplinary study; and Lori Blum, Grants Administration for her assistance in budgetary matters. The project described was supported by Award Number Grant 8UL1TR000090-05 from the National Center for Advancing Translational Sciences. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Center for Advancing Translational Sciences or the National Institutes of Health.
Publisher Copyright:
© 2016, Ascend Media. All rights reserved.
PY - 2016/7
Y1 - 2016/7
N2 - Objectives: The process of planning for end-of life decisions, also known as advance care planning (ACP), is associated with numerous positive outcomes, including improved patient satisfaction with care and improved patient quality of life in terminal illness. In this study, we sought to test a novel personal health record (PHR)-delivered ACP framework through a small-scale randomized trial of usual care practices versus PHR-delivered ACP. Study Design: Randomized controlled pilot intervention. Methods: A novel PHR-ACP tool was tested using data and feedback collected in a randomized controlled pilot intervention (n = 50). Participants in the control group received standard care for ACP conversations while participants randomized to the intervention group received a novel ACP framework through the electronic health record. Results: The pilot study testing the ACP framework found that its use resulted in improved ACP documentation rates (P = .001) and quality (P = .007) compared with usual care. Conclusions: Tethered PHR use as an initial ACP communication tool can improve outpatient documentation rates and quality. Future studies obtaining patient feedback on a revised framework and testing in a larger setting are needed to determine reproducibility of findings.
AB - Objectives: The process of planning for end-of life decisions, also known as advance care planning (ACP), is associated with numerous positive outcomes, including improved patient satisfaction with care and improved patient quality of life in terminal illness. In this study, we sought to test a novel personal health record (PHR)-delivered ACP framework through a small-scale randomized trial of usual care practices versus PHR-delivered ACP. Study Design: Randomized controlled pilot intervention. Methods: A novel PHR-ACP tool was tested using data and feedback collected in a randomized controlled pilot intervention (n = 50). Participants in the control group received standard care for ACP conversations while participants randomized to the intervention group received a novel ACP framework through the electronic health record. Results: The pilot study testing the ACP framework found that its use resulted in improved ACP documentation rates (P = .001) and quality (P = .007) compared with usual care. Conclusions: Tethered PHR use as an initial ACP communication tool can improve outpatient documentation rates and quality. Future studies obtaining patient feedback on a revised framework and testing in a larger setting are needed to determine reproducibility of findings.
UR - http://www.scopus.com/inward/record.url?scp=84978796230&partnerID=8YFLogxK
M3 - Article
C2 - 27442309
AN - SCOPUS:84978796230
VL - 22
SP - e258-e263
JO - American Journal of Managed Care
JF - American Journal of Managed Care
SN - 1088-0224
IS - 7
ER -