Ten principles for data sharing and commercialization

Curtis L. Cole, Soumitra Sengupta, Sarah Rossetti, David K. Vawdrey, Michael Halaas, Thomas M. Maddox, Geoff Gordon, Trushna Dave, Philip R.O. Payne, Andrew E. Williams, Deborah Estrin

Research output: Contribution to journalReview articlepeer-review

2 Scopus citations

Abstract

Digital medical records have enabled us to employ clinical data in many new and innovative ways. However, these advances have brought with them a complex set of demands for healthcare institutions regarding data sharing with topics such as data ownership, the loss of privacy, and the protection of the intellectual property. The lack of clear guidance from government entities often creates conflicting messages about data policy, leaving institutions to develop guidelines themselves. Through discussions with multiple stakeholders at various institutions, we have generated a set of guidelines with 10 key principles to guide the responsible and appropriate use and sharing of clinical data for the purposes of care and discovery. Industry, universities, and healthcare institutions can build upon these guidelines toward creating a responsible, ethical, and practical response to data sharing.

Original languageEnglish
Pages (from-to)646-649
Number of pages4
JournalJournal of the American Medical Informatics Association
Volume28
Issue number3
DOIs
StatePublished - Mar 1 2021

Keywords

  • data sharing
  • electronic medical records
  • intellectual property
  • policy
  • privacy

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