Taking care of a dying grandparent: Case studies of grandchildren in the hospice caregiver role

Jaime R. Boquet, Debra Parker Oliver, Elaine Wittenberg-Lyles, Ardith Z. Doorenbos, George Demiris

Research output: Contribution to journalArticlepeer-review

8 Scopus citations

Abstract

This study aims to provide insight into the role of grandchildren as informal hospice caregivers. It presents 4 cases that highlight the challenges and perceptions of grandchildren who care for a grandparent at the end of life. A researcher met regularly with family caregivers to discuss the problems or challenges during hospice caregiving. Although each caregiver presented unique individual experiences, several themes are common among the family caregivers including fatigue, stress, guilt, and loss of the "grandchild" identity. Grandchildren caregivers often take care of 3 generations (grandparents, parents, and children) and in many cases need additional assistance to help them overcome the challenges associated with managing a household, career, family, and caregiving roles.

Original languageEnglish
Pages (from-to)564-568
Number of pages5
JournalAmerican Journal of Hospice and Palliative Medicine
Volume28
Issue number8
DOIs
StatePublished - Dec 2011

Keywords

  • caregiver burden
  • caregiving
  • coping
  • family relationships
  • grandchildren
  • hospice

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