Surrogate consent for genomics research in intensive care

Ann K. Shelton, Anne F. Fish, J. Perren Cobb, Jean A. Bachman, Ruth L. Jenkins, Victor Battistich, Bradley D. Freeman

Research output: Contribution to journalArticlepeer-review

8 Scopus citations


Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates' consent for genomics research in intensive care patients revealed that few wellcontrolled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained.

Original languageEnglish
Pages (from-to)418-426
Number of pages9
JournalAmerican Journal of Critical Care
Issue number5
StatePublished - Sep 2009


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