Show me the money An analysis of underserved stakeholders' funding priorities in Patient Centered Outcomes Research domains

Stephanie Solomon Cargill, Lauren Lyn Baker, Susan Dorr Goold

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Aim: Develop an accessible exercise to engage underserved populations about research funding priorities; analyze the criteria they use to prioritize research; contrast these criteria to those currently used by Patient Centered Outcomes Research Institute (PCORI). Materials & methods: Academic and community partners collaborated to develop an Ipad exercise to facilitate group deliberation about PCOR funding priorities. 16 groups (n = 183) of underserved individuals in both urban and rural areas participated. Recordings were qualitatively analyzed for prioritization criteria. Results: Analysis yielded ten codes, many of which were similar to PCORI criteria, but all of which challenged or illuminated these criteria. Conclusion: Directly involving underserved populations in determining funding criteria is both feasible and important, and can better fulfill PCORI's goal of incorporating patient priorities.

Original languageEnglish
Pages (from-to)449-459
Number of pages11
JournalJournal of Comparative Effectiveness Research
Volume6
Issue number5
DOIs
StatePublished - Jul 2017

Keywords

  • decision-making
  • minority groups
  • patient-centered outcomes research
  • public deliberation
  • research priorities
  • resource allocation
  • underserved populations

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