Shared Decision Making in Home Hospice Nursing Visits: A Qualitative Study

Debra Parker Oliver, Karla Washington, George Demiris, Audrey Wallace, Marc R. Propst, Aisha M. Uraizee, Kevin Craig, Margaret F. Clayton, Maija Reblin, Lee Ellington

Research output: Contribution to journalArticlepeer-review

9 Scopus citations


Context: Shared decisions between health care providers and patients and families are replacing the traditional physician-driven plans of care. Hospice philosophy recognizes the patient and family as a unit of care and embraces their role in decision making. Objective: The goal of this study was to evaluate the shared decisions between hospice nurses and patients and family members. Methods: A secondary analysis of audio recordings of 65 home hospice nurse visits from 65 home hospice nurse visits in 11 different U.S. hospice programs. Results: To varying degrees, hospice nurses used all the recommended elements of shared decision making during home visits with patients and families; however, not all elements were used in every visit. The most commonly used element was defining a problem, and the least used element was the assessment of patient and family understanding. Conclusions: Hospice staff can benefit from a more purposeful shared decision-making process and a greater focus on assessment of patient and family understanding and ability to implement plans of care.

Original languageEnglish
Pages (from-to)922-929
Number of pages8
JournalJournal of Pain and Symptom Management
Issue number3
StatePublished - Mar 2018


  • Shared decision making
  • caregiving
  • family
  • hospice
  • nurse visits


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