TY - JOUR
T1 - Recruitment, Retention and Intervention Delivery Experiences With Hospice Family Caregivers
AU - Cruz-Oliver, Dulce M.
AU - Milner, Gabrielle E.
AU - Abshire Saylor, Martha
AU - Nelson, Katie E.
AU - Blinka, Marcela D.
AU - Durkin, Nowella
AU - Smith, Thomas J.
AU - Oliver, Debra Parker
N1 - Publisher Copyright:
© The Author(s) 2022.
PY - 2023/4
Y1 - 2023/4
N2 - Background: Recruitment and attrition are inherently challenging issues in hospice research. We sought to describe strategies of recruitment, retention, and delivery of NOVELA (short for telenovela), an intervention for hospice family caregivers (HFCG). Methods: Statistics were kept of every referral, consenting participant, visit session, and intervention activity. We used the Social Marketing Mix Framework to describe recruiting strategies employed and lessons learned. Results: Two hospices in the U.S. Mid-Atlantic region referred 47 HFCG and N = 20 agreed to participate, out of which 50% (N = 10) completed all 4 sessions with an average of 2.8 sessions per person, each lasting an average duration of 13.5 minutes (range 8.0-25.7). The main reason for missing a session was a patient’s death (N = 8). Successful recruitment strategies employed in NOVELA included: (a) intensive start-up hospice engagement, (b) remote recruitment and delivery of NOVELA, and (c) scheduling flexibility to work around caregivers’ other demands. Conclusion: The recruitment and intervention delivery had successes and challenges resulting in the identification of multiple opportunities to strengthen our strategy and inform future studies with HFCGs.
AB - Background: Recruitment and attrition are inherently challenging issues in hospice research. We sought to describe strategies of recruitment, retention, and delivery of NOVELA (short for telenovela), an intervention for hospice family caregivers (HFCG). Methods: Statistics were kept of every referral, consenting participant, visit session, and intervention activity. We used the Social Marketing Mix Framework to describe recruiting strategies employed and lessons learned. Results: Two hospices in the U.S. Mid-Atlantic region referred 47 HFCG and N = 20 agreed to participate, out of which 50% (N = 10) completed all 4 sessions with an average of 2.8 sessions per person, each lasting an average duration of 13.5 minutes (range 8.0-25.7). The main reason for missing a session was a patient’s death (N = 8). Successful recruitment strategies employed in NOVELA included: (a) intensive start-up hospice engagement, (b) remote recruitment and delivery of NOVELA, and (c) scheduling flexibility to work around caregivers’ other demands. Conclusion: The recruitment and intervention delivery had successes and challenges resulting in the identification of multiple opportunities to strengthen our strategy and inform future studies with HFCGs.
KW - family caregivers
KW - hospice
KW - intervention delivery
KW - lessons learned
KW - recruitment
KW - retention
KW - telenovela videos
UR - http://www.scopus.com/inward/record.url?scp=85133313624&partnerID=8YFLogxK
U2 - 10.1177/10499091221110855
DO - 10.1177/10499091221110855
M3 - Article
C2 - 35771204
AN - SCOPUS:85133313624
SN - 1049-9091
VL - 40
SP - 409
EP - 415
JO - American Journal of Hospice and Palliative Medicine
JF - American Journal of Hospice and Palliative Medicine
IS - 4
ER -