TY - JOUR
T1 - Race influences parent report of concerns about symptoms of autism spectrum disorder
AU - Donohue, Meghan Rose
AU - Childs, Amber W.
AU - Richards, Megan
AU - Robins, Diana L.
N1 - Funding Information:
This work was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (R01HD039961); the Maternal and Child Health Bureau (R40MC00270); a US Department of Education Student-Initiated Research Grant; a University of Connecticut’s Research Foundation Faculty Grant; the National Alliance of Autism Research; and a National Institute of Mental Health Predoctoral Fellowship (F31MH12550).
Publisher Copyright:
© The Author(s) 2017.
PY - 2019/1/1
Y1 - 2019/1/1
N2 - Racial differences in parent report of concerns about their child’s development to healthcare providers may contribute to delayed autism spectrum disorder diagnoses in Black children. We tested the hypotheses that compared to White parents, Black parents of children with autism spectrum disorder would report fewer concerns about autism symptoms and would be more likely to report concerns about disruptive behaviors. A sample of 18- to 40-month-old toddlers (N = 174) with autism spectrum disorder and their parent participated. After screening positive for autism spectrum disorder risk, but prior to a diagnostic evaluation, parents completed free-response questions soliciting concerns about their child’s development. Parent responses were coded for the presence or the absence of 10 possible concerns, which were grouped into autism concerns (e.g. social and restricted and repetitive behavior concerns) or non-autism concerns (e.g. general developmental and disruptive behavior concerns). Compared to White parents, Black parents reported significantly fewer autism concerns and fewer social and restricted and repetitive behavior concerns. However, Black parents did not report significantly fewer non-autism concerns. Race did not influence parent report of disruptive behavior concerns. Lower reporting of autism concerns by Black parents may impact providers’ abilities to identify children who need further screening or evaluation.
AB - Racial differences in parent report of concerns about their child’s development to healthcare providers may contribute to delayed autism spectrum disorder diagnoses in Black children. We tested the hypotheses that compared to White parents, Black parents of children with autism spectrum disorder would report fewer concerns about autism symptoms and would be more likely to report concerns about disruptive behaviors. A sample of 18- to 40-month-old toddlers (N = 174) with autism spectrum disorder and their parent participated. After screening positive for autism spectrum disorder risk, but prior to a diagnostic evaluation, parents completed free-response questions soliciting concerns about their child’s development. Parent responses were coded for the presence or the absence of 10 possible concerns, which were grouped into autism concerns (e.g. social and restricted and repetitive behavior concerns) or non-autism concerns (e.g. general developmental and disruptive behavior concerns). Compared to White parents, Black parents reported significantly fewer autism concerns and fewer social and restricted and repetitive behavior concerns. However, Black parents did not report significantly fewer non-autism concerns. Race did not influence parent report of disruptive behavior concerns. Lower reporting of autism concerns by Black parents may impact providers’ abilities to identify children who need further screening or evaluation.
KW - autism
KW - autism spectrum disorder
KW - child development
KW - diagnostic disparities
KW - parent concerns
KW - race and ethnicity
UR - http://www.scopus.com/inward/record.url?scp=85056069565&partnerID=8YFLogxK
U2 - 10.1177/1362361317722030
DO - 10.1177/1362361317722030
M3 - Article
C2 - 29100475
AN - SCOPUS:85056069565
SN - 1362-3613
VL - 23
SP - 100
EP - 111
JO - Autism
JF - Autism
IS - 1
ER -