TY - JOUR
T1 - Preferences for Participation Measurement Among Individuals Diagnosed With Cancer
T2 - A Qualitative Content Analysis
AU - L’Hotta, Allison J.
AU - Varughese, Taniya E.
AU - Lyons, Kathleen D.
AU - Trebelhorn, Audrey
AU - Manohar, Annamayil
AU - King, Allison A.
N1 - Publisher Copyright:
© The Author(s) 2023.
PY - 2024/4
Y1 - 2024/4
N2 - Individuals with cancer experience occupational participation restrictions, but there is no consensus on how to measure this construct. The objective of this study is to describe the perspectives and preferences of individuals with cancer regarding participation measurement. Forty individuals with brain, breast, colorectal, and lung cancer provided feedback on three participation measures in semi-structured interviews. Through an iterative, team-based content analysis approach, interview text was coded using the study codebook and organized into themes. Core themes included (a) participation measures highlighted occupational priorities, (b) measuring participation can identify supportive care needs, (c) measures must balance thoroughness with speed of completion, (d) measurement timeframe varies by treatment phase, and (e) evaluating community engagement is not a priority for some individuals with cancer. Integrating participation measures into cancer care can support referrals to occupational therapy and supportive services. It is essential to consider time since cancer diagnosis and client priorities when selecting participation measures.
AB - Individuals with cancer experience occupational participation restrictions, but there is no consensus on how to measure this construct. The objective of this study is to describe the perspectives and preferences of individuals with cancer regarding participation measurement. Forty individuals with brain, breast, colorectal, and lung cancer provided feedback on three participation measures in semi-structured interviews. Through an iterative, team-based content analysis approach, interview text was coded using the study codebook and organized into themes. Core themes included (a) participation measures highlighted occupational priorities, (b) measuring participation can identify supportive care needs, (c) measures must balance thoroughness with speed of completion, (d) measurement timeframe varies by treatment phase, and (e) evaluating community engagement is not a priority for some individuals with cancer. Integrating participation measures into cancer care can support referrals to occupational therapy and supportive services. It is essential to consider time since cancer diagnosis and client priorities when selecting participation measures.
KW - cancer
KW - neuro-oncology
KW - outcome measures
KW - participation
KW - qualitative research
UR - http://www.scopus.com/inward/record.url?scp=85187868632&partnerID=8YFLogxK
U2 - 10.1177/15394492231181104
DO - 10.1177/15394492231181104
M3 - Article
C2 - 37354019
AN - SCOPUS:85187868632
SN - 1539-4492
VL - 44
SP - 244
EP - 254
JO - OTJR Occupation, Participation and Health
JF - OTJR Occupation, Participation and Health
IS - 2
ER -