Palliative care knowledge, information sources, and beliefs: Results of a national survey of adults in the USA

Eric Adjei Boakye, Kahee A. Mohammed, Nosayaba Osazuwa-Peters, Min Jee Lee, Lauren Slomer, Damilola Emuze, Wiley D. Jenkins

Research output: Contribution to journalArticle

1 Scopus citations

Abstract

ObjectiveDespite its established benefits, palliative care (PC) is not well known among patients and family/caregivers. From a nationally representative survey, we sought to assess the following associated with PC: knowledge, knowledge sources, and beliefs.MethodsData were drawn from the Health Information National Trends Study (HINTS 5 Cycle 2), a cross-sectional, survey of non-institutionalized adults aged 18+ years in the USA. Data were weighted and assessed by proportional comparison and multivariable logistic regression.ResultsA total of 3504 respondents were identified, and approximately 29% knew about PC. In the adjusted model, less PC knowledge was associated with: lower age (those aged <50), male gender, lower education (<high school graduation or high school graduate), and non-internet users. A little over half (55%) of respondents accessed healthcare providers first for PC information, and 80% considered providers the most trusted source of PC information. Most of the participants strongly/somewhat agreed that the goal of PC is to help friends and family cope with a patient's illness (90.6%), offer social and emotional support (93.4%), and manage pain and other physical symptoms (95.1%). Similarly, a majority (83.3%) strongly/somewhat agreed that it is a doctor's obligation to inform all patients with cancer about the option of PC.Significance of resultsPC knowledge was generally low (1-in-3 respondents knew of PC), with significant differences according to age, gender, education, and internet use. These data provide a baseline from which PC education policies and interventions may be measured.

Original languageEnglish
JournalPalliative and Supportive Care
DOIs
StateAccepted/In press - Jan 1 2019

Keywords

  • Beliefs about palliative care
  • HINTS
  • Palliative care knowledge
  • Sources of palliative care information seeking
  • Trusted source of information for palliative care

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