TY - JOUR
T1 - OMERACT 2023 Systemic Lupus Erythematosus Special Interest Group
T2 - Winnowing and Binning Preliminary Candidate Domains for the Core Outcome Set
AU - OMERACT SLE Working Group
AU - Nielsen, Wils
AU - Strand, Vibeke
AU - Simon, Lee S.
AU - Parodis, Ioannis
AU - Kim, Alfred H.J.
AU - Desai, Maya
AU - Enman, Yvonne
AU - Wallace, Daniel
AU - Chaichian, Yashaar
AU - Navarra, Sandra
AU - Aranow, Cynthia
AU - MacKay, Meggan
AU - Trotter, Kimberly
AU - Tayer-Shifman, Oshrat E.
AU - Duarte-Garcia, Ali
AU - Shan Tam, Lai
AU - Ugarte-Gil, Manuel F.
AU - PonsEstel, Guillermo J.
AU - Reynolds, John A.
AU - Nikpour, Mandana
AU - Hoi, Alberta
AU - Romero-Diaz, Juanita
AU - Papachristos, Danaë
AU - Aggarwal, Amita
AU - Mok, Chi Chiu
AU - Fujio, Keishi
AU - Ramsey-Goldman, Rosalind
AU - Howe, Aaron
AU - Kia, Behdin Nowrouzi
AU - Bonilla, Dennisse
AU - Thumboo, Julian
AU - Mosca, Marta
AU - Aringer, Martin
AU - Johnson, Sindhu R.
AU - Drucker, Aaron M.
AU - Morand, Eric
AU - Bruce, Ian
AU - Touma, Zahi
N1 - Publisher Copyright:
© 2024
PY - 2024/4
Y1 - 2024/4
N2 - Background: The Outcome Measures in Rheumatology (OMERACT) Systemic Lupus Erythematosus (SLE) Working Group held a Special Interest Group (SIG) at the OMERACT 2023 conference in Colorado Springs where SLE collaborators reviewed domain sub-themes generated through qualitative research and literature review. Objective: The objective of the SIG and the subsequent meetings of the SLE Working Group was to begin the winnowing and binning of candidate domain sub-themes into a preliminary list of candidate domains that will proceed to the consensus Delphi exercise for the SLE COS. Methods: Four breakout groups at the SLE SIG in Colorado Springs winnowed and binned 132 domain sub-themes into candidate domains, which was continued with a series of virtual meetings by an advisory group of SLE patient research partners (PRPs), members of the OMERACT SLE Working Group Steering Committee, and other collaborators. Results: The 132 domain sub-themes were reduced to a preliminary list of 20 candidate domains based on their clinical and research relevance for clinical trials and research studies. Conclusion: A meaningful and substantial winnowing and binning of candidate domains for the SLE COS was achieved resulting in a preliminary list of 20 candidate domains.
AB - Background: The Outcome Measures in Rheumatology (OMERACT) Systemic Lupus Erythematosus (SLE) Working Group held a Special Interest Group (SIG) at the OMERACT 2023 conference in Colorado Springs where SLE collaborators reviewed domain sub-themes generated through qualitative research and literature review. Objective: The objective of the SIG and the subsequent meetings of the SLE Working Group was to begin the winnowing and binning of candidate domain sub-themes into a preliminary list of candidate domains that will proceed to the consensus Delphi exercise for the SLE COS. Methods: Four breakout groups at the SLE SIG in Colorado Springs winnowed and binned 132 domain sub-themes into candidate domains, which was continued with a series of virtual meetings by an advisory group of SLE patient research partners (PRPs), members of the OMERACT SLE Working Group Steering Committee, and other collaborators. Results: The 132 domain sub-themes were reduced to a preliminary list of 20 candidate domains based on their clinical and research relevance for clinical trials and research studies. Conclusion: A meaningful and substantial winnowing and binning of candidate domains for the SLE COS was achieved resulting in a preliminary list of 20 candidate domains.
KW - Core Outcome Set
KW - OMERACT
KW - Systemic Lupus Erythematosus
UR - http://www.scopus.com/inward/record.url?scp=85185165757&partnerID=8YFLogxK
U2 - 10.1016/j.semarthrit.2024.152380
DO - 10.1016/j.semarthrit.2024.152380
M3 - Article
C2 - 38281467
AN - SCOPUS:85185165757
SN - 0049-0172
VL - 65
JO - Seminars in Arthritis and Rheumatism
JF - Seminars in Arthritis and Rheumatism
M1 - 152380
ER -