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New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)

  • N. E. Carlozzi
  • , N. R. Downing
  • , M. K. McCormack
  • , S. G. Schilling
  • , J. S. Perlmutter
  • , E. A. Hahn
  • , J. S. Lai
  • , S. Frank
  • , K. A. Quaid
  • , J. S. Paulsen
  • , D. Cella
  • , S. M. Goodnight
  • , J. A. Miner
  • , M. A. Nance

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Psychology