New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)
- N. E. Carlozzi
- , N. R. Downing
- , M. K. McCormack
- , S. G. Schilling
- , J. S. Perlmutter
- , E. A. Hahn
- , J. S. Lai
- , S. Frank
- , K. A. Quaid
- , J. S. Paulsen
- , D. Cella
- , S. M. Goodnight
- , J. A. Miner
- , M. A. Nance
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