New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)

N. E. Carlozzi, N. R. Downing, M. K. McCormack, S. G. Schilling, J. S. Perlmutter, E. A. Hahn, J. S. Lai, S. Frank, K. A. Quaid, J. S. Paulsen, D. Cella, S. M. Goodnight, J. A. Miner, M. A. Nance

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