Mentoring Program for Young Adults with Sickle Cell Disease

Christine Berg, Allison King, Dorothy Farrar Edwards

Research output: Contribution to journalArticlepeer-review

3 Scopus citations


Using descriptive case studies, this paper describes a short-term mentoring program using goal attainment scaling for young adults with sickle cell disease (SCD). Two participants received three and seven visits, respectively, before dropping out of the program with no significant change in goal attainment scores. Although the program supported meaningful individualized goals, repeated and cumulative effects of hospitalizations, sickle cell pain episodes, family health issues, unsafe location of residence, and transportation appeared to remain significant barriers for to achieve stated goals. While the value of an individualized, community-based mentoring experience that addresses goal attainment remains unanswered, this project documents the complex and health barriers of young adults living with SCD.

Original languageEnglish
Pages (from-to)124-136
Number of pages13
JournalOccupational Therapy in Health Care
Issue number2
StatePublished - Apr 3 2018


  • Sickle cell disease
  • mentoring
  • occupational therapy


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