TY - JOUR
T1 - Measuring retention within the adolescent brain cognitive development (ABCD)SM study
AU - Feldstein Ewing, Sarah W.
AU - Dash, Genevieve F.
AU - Thompson, Wesley K.
AU - Reuter, Chase
AU - Diaz, Vanessa G.
AU - Anokhin, Andrey
AU - Chang, Linda
AU - Cottler, Linda B.
AU - Dowling, Gayathri J.
AU - LeBlanc, Kimberly
AU - Zucker, Robert A.
AU - Tapert, Susan F.
AU - Brown, Sandra A.
AU - Garavan, Hugh
N1 - Funding Information:
This research was supported by the National Institutes of Health (U01DA041148-01; U01DA041117; U01DA051016; U01DA041106; U01DA041089; U24DA041147; U24DA041123; U01DA051039; UL1TR001427; RF1MH120025; F31DA054701). Dr. Gayathri Dowling was substantially involved in all of the cited grants. Dr. Kimberly LeBlanc contributed to the interpretation of the data and participated in the preparation, review and approval of the manuscript, consistent with her role on the ABCD Federal Partners Group. The views and opinions expressed in this manuscript are those of the authors only and do not necessarily represent the views, official policy or position of the U.S. Department of Health and Human Services or any of its affiliated institutions or agencies.
Funding Information:
This research was supported by the National Institutes of Health ( U01DA041148-01 ; U01DA041117 ; U01DA051016 ; U01DA041106 ; U01DA041089 ; U24DA041147 ; U24DA041123 ; U01DA051039 ; UL1TR001427 ; RF1MH120025 ; F31DA054701 ). Dr. Gayathri Dowling was substantially involved in all of the cited grants. Dr. Kimberly LeBlanc contributed to the interpretation of the data and participated in the preparation, review and approval of the manuscript, consistent with her role on the ABCD Federal Partners Group. The views and opinions expressed in this manuscript are those of the authors only and do not necessarily represent the views, official policy or position of the U.S. Department of Health and Human Services or any of its affiliated institutions or agencies.
Publisher Copyright:
© 2022
PY - 2022/4
Y1 - 2022/4
N2 - The Adolescent Brain Cognitive Development (ABCD)SM study aims to retain a demographically diverse sample of youth and one parent across 21 sites throughout its 10-year protocol while minimizing selective (systematic) attrition. To evaluate the effectiveness of these efforts, the ABCD Retention Workgroup (RW) has employed a data-driven approach to examine, track, and intervene via three key metrics: (1) which youth completed visits late; (2) which youth missed visits; and (3) which youth withdrew from the study. The RW actively examines demographic (race, education level, family income) and site factors (visit satisfaction, distance from site, and enrollment in ancillary studies) to strategize efforts that will minimize disengagement and loss of participating youth and parents. Data showed that the most robust primary correlates of late visits were distance from study site, race, and parental education level. Race, lower parental education level, parental employment status, and lower family income were associated with higher odds of missed visits, while being enrolled in one of the ancillary studies was associated with lower odds of missed visits. Additionally, parents who were primary Spanish speakers withdrew at slightly higher rates. These findings provide insight into future targets for proactive retention efforts by the ABCD RW.
AB - The Adolescent Brain Cognitive Development (ABCD)SM study aims to retain a demographically diverse sample of youth and one parent across 21 sites throughout its 10-year protocol while minimizing selective (systematic) attrition. To evaluate the effectiveness of these efforts, the ABCD Retention Workgroup (RW) has employed a data-driven approach to examine, track, and intervene via three key metrics: (1) which youth completed visits late; (2) which youth missed visits; and (3) which youth withdrew from the study. The RW actively examines demographic (race, education level, family income) and site factors (visit satisfaction, distance from site, and enrollment in ancillary studies) to strategize efforts that will minimize disengagement and loss of participating youth and parents. Data showed that the most robust primary correlates of late visits were distance from study site, race, and parental education level. Race, lower parental education level, parental employment status, and lower family income were associated with higher odds of missed visits, while being enrolled in one of the ancillary studies was associated with lower odds of missed visits. Additionally, parents who were primary Spanish speakers withdrew at slightly higher rates. These findings provide insight into future targets for proactive retention efforts by the ABCD RW.
KW - ABCD study®
KW - Adolescents
KW - Longitudinal studies
KW - Metrics
KW - Retention
UR - http://www.scopus.com/inward/record.url?scp=85124321872&partnerID=8YFLogxK
U2 - 10.1016/j.dcn.2022.101081
DO - 10.1016/j.dcn.2022.101081
M3 - Article
C2 - 35152002
AN - SCOPUS:85124321872
VL - 54
JO - Developmental Cognitive Neuroscience
JF - Developmental Cognitive Neuroscience
SN - 1878-9293
M1 - 101081
ER -