@article{519b51cd72f84375aa24c7750c1a6662,
title = "Longitudinal parental preferences for late effects communication during cancer treatment",
abstract = "Few studies have investigated parent preferences for late effects communication during pediatric cancer treatment. We used questionnaire data to assess whether parental preferences for late effects information change over the year after diagnosis. Most parents found this information to be very/extremely important at baseline, assessed soon after diagnosis, (94%, 153/162), 4 months (91%, 147/162), and 12 months (96%, 156/163). Similarly, most parents wanted as much detail as possible about late effects at baseline (85%, 141/165), 4 months (87%, 144/165), and 12 months (83%, 137/165). Parents of children with favorable prognoses preferred more details at baseline (OR 2.94, 1.18–7.31, P = 0.02) than parents whose children had less favorable prognoses.",
keywords = "communication, late effects, parent, pediatric oncology, survivorship",
author = "Sisk, {Bryan A.} and Greenzang, {Katie A.} and Kang, {Tammy I.} and Mack, {Jennifer W.}",
note = "Funding Information: Bryan A. Sisk, Washington University School of Medicine, Department of Pediatrics, Division of Hematology and Oncology, 660 S. Euclid Ave., Campus Box 8116, St. Louis, MO 63123. Email: siskb@wustl.edu Grant sponsor: American Cancer Society Mentored Research Scholar; Grant number: MRSG-08-010-01-CPPB; Grant sponsor: 2007 American Society of Clinical Oncology Career Development Award. Funding Information: This study was supported by American Cancer Society Mentored Research Scholar Grant MRSG-08-010-01-CPPB (to J.W.M.) and 2007 American Society of Clinical Oncology Career Development Award (to J.W.M.). Publisher Copyright: {\textcopyright} 2017 Wiley Periodicals, Inc.",
year = "2018",
month = jan,
doi = "10.1002/pbc.26760",
language = "English",
volume = "65",
journal = "Pediatric Blood and Cancer",
issn = "1545-5009",
number = "1",
}