TY - JOUR
T1 - Living with Alzheimer Disease and Other Types of Dementia
T2 - Stories from Caregivers
AU - Mozersky, Jessica
AU - Davis, Dena S.
N1 - Publisher Copyright:
© 2020 by Johns Hopkins University Press.
PY - 2020/6/1
Y1 - 2020/6/1
N2 - This symposium includes twelve personal narratives from people who have provided care to a spouse, parent, another relative, or friend with Alzheimer disease or related dementias (ADRD). People with ADRDs often face years of cognitive decline with memory and thinking that eventually require help from others to assist with their daily activities. Most people caring for older adults in the US are unpaid family members, friends, or other informal caregivers. People providing care often experience emotional and physical stress, or financial burdens. This symposium also includes three commentaries by experts in the fields of bioethics and philosophy, justice in healthcare, family caregiving, and end of life choices. These narratives provide a forum for exploring caregiver needs, suffering, benefits, and joys, as well as opportunities to improve the way we support caregivers and people with dementia and Alzheimer disease.
AB - This symposium includes twelve personal narratives from people who have provided care to a spouse, parent, another relative, or friend with Alzheimer disease or related dementias (ADRD). People with ADRDs often face years of cognitive decline with memory and thinking that eventually require help from others to assist with their daily activities. Most people caring for older adults in the US are unpaid family members, friends, or other informal caregivers. People providing care often experience emotional and physical stress, or financial burdens. This symposium also includes three commentaries by experts in the fields of bioethics and philosophy, justice in healthcare, family caregiving, and end of life choices. These narratives provide a forum for exploring caregiver needs, suffering, benefits, and joys, as well as opportunities to improve the way we support caregivers and people with dementia and Alzheimer disease.
KW - Alzheimer Disease
KW - Caregivers
KW - Challenges
KW - Dementia
KW - Empathy
KW - Health Care Economics
KW - Joys
KW - Medical Ethics
KW - Narratives
KW - Social Justice
KW - Terminal Care
UR - http://www.scopus.com/inward/record.url?scp=85099707916&partnerID=8YFLogxK
U2 - 10.1353/nib.2020.0028
DO - 10.1353/nib.2020.0028
M3 - Editorial
C2 - 33416567
AN - SCOPUS:85099707916
SN - 2157-1732
VL - 10
SP - 89
EP - 93
JO - Narrative inquiry in bioethics
JF - Narrative inquiry in bioethics
IS - 2
ER -