Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning, disability and health

Alex W.K. Wong, Stephen C.L. Lau, David Cella, Jin Shei Lai, Guanli Xie, Lidian Chen, Chetwyn C.H. Chan, Allen W. Heinemann

Research output: Contribution to journalArticle

6 Scopus citations

Abstract

Background: The quality of life in neurological disorders (Neuro-QoL) is a U.S. National Institutes of Health initiative that produced a set of self-report measures of physical, mental, and social health experienced by adults or children who have a neurological condition or disorder. Objective: To describe the content of the Neuro-QoL at the item level using the World Health Organization’s international classification of functioning, disability and health (ICF). Methods: We assessed the Neuro-QoL for its content coverage of functioning and disability relative to each of the four ICF domains (i.e., body functions, body structures, activities and participation, and environment). We used second-level ICF three-digit codes to classify items into categories within each ICF domain and computed the percentage of categories within each ICF domain that were represented in the Neuro-QoL items. Results: All items of Neuro-QoL could be mapped to the ICF categories at the second-level classification codes. The activities and participation domain and the mental functions category of the body functions domain were the areas most often represented by Neuro-QoL. Neuro-QoL provides limited coverage of the environmental factors and body structure domains. Conclusions: Neuro-QoL measures map well to the ICF. The Neuro-QoL–ICF-mapped items provide a blueprint for users to select appropriate measures in ICF-based measurement applications.

Original languageEnglish
Pages (from-to)2435-2448
Number of pages14
JournalQuality of Life Research
Volume26
Issue number9
DOIs
StatePublished - Sep 1 2017

Keywords

  • ICF
  • Neurological disorders
  • Outcomes assessment (Healthcare)
  • Quality of life
  • Rehabilitation

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