TY - JOUR
T1 - Inequities in childhood cancer research
T2 - A scoping review
AU - Hunleth, Jean
AU - Burack, Sarah
AU - Kaufman, Lindsey
AU - Mohrmann, Caroline
AU - Shato, Thembekile
AU - Wiedenman, Eric
AU - Njelesani, Janet
N1 - Publisher Copyright:
© 2024 The Authors
PY - 2024/12
Y1 - 2024/12
N2 - An integral part of understanding and then designing programs to reduce childhood cancer inequities includes adequate representation of people with cancer in research, including children. A scoping review was carried out to understand how cancer research is oriented toward inequities and to identify who has participated in childhood qualitative cancer research. A systematic search identified 119 qualitative studies that met inclusion criteria, with most studies taking place in high-income countries (n=84). Overall, data were lacking on social determinants of health at multiple levels—structural, household, child, and guardian. Only 29 studies reported on race and/or ethnicity, with the majority of those including predominantly or all white children. Six articles included socioeconomic information, and across most articles, attention was absent to the financial ramifications of cancer care. Limited reporting of sociodemographics highlights a broader issue of neglecting key demographics and social factors that contribute to inequities.
AB - An integral part of understanding and then designing programs to reduce childhood cancer inequities includes adequate representation of people with cancer in research, including children. A scoping review was carried out to understand how cancer research is oriented toward inequities and to identify who has participated in childhood qualitative cancer research. A systematic search identified 119 qualitative studies that met inclusion criteria, with most studies taking place in high-income countries (n=84). Overall, data were lacking on social determinants of health at multiple levels—structural, household, child, and guardian. Only 29 studies reported on race and/or ethnicity, with the majority of those including predominantly or all white children. Six articles included socioeconomic information, and across most articles, attention was absent to the financial ramifications of cancer care. Limited reporting of sociodemographics highlights a broader issue of neglecting key demographics and social factors that contribute to inequities.
KW - Cancer disparities
KW - Childhood cancer
KW - Pediatric cancer
KW - Qualitative research
KW - Scoping review
UR - http://www.scopus.com/inward/record.url?scp=85196479200&partnerID=8YFLogxK
U2 - 10.1016/j.ejcped.2024.100171
DO - 10.1016/j.ejcped.2024.100171
M3 - Review article
C2 - 38948690
AN - SCOPUS:85196479200
SN - 2772-610X
VL - 4
JO - EJC Paediatric Oncology
JF - EJC Paediatric Oncology
M1 - 100171
ER -