Hospice Family Caregiver Perceptions of Benefits and Challenges of a Telenovela Educational Intervention

Dulce M. Cruz-Oliver, Martha Abshire Saylor, Katie E. Nelson, Gabrielle E. Milner, Marcela D. Blinka, Nowell Durkin, Chakra Budhathoki, Debra Parker-Oliver, Thomas J. Smith

Research output: Contribution to journalArticlepeer-review

Abstract

Background: Telenovelas show significant promise as a mode of education that could potentially enhance hospice family caregivers' (HFCG) ability to manage distress or pain for themselves and the care recipient. Objectives: We sought to understand HFCGs' perceived benefits and challenges of NOVELA using the Levels of Kirkpatrick as a conceptual framework. Setting/Subjects: HFCGs from two hospices in the Mid-Atlantic region of the United States. Measurements: Semistructured interviews were conducted to understand perceptions of HFCGs on the benefits and challenges of the NOVELA intervention. Results: Participants (N = 20) in our study were mainly homebound, well educated, White female, and adult children of people with advanced cancer who reported mild anxiety and moderate self-efficacy at baseline. Three unique themes were identified: Acceptability of NOVELA, usability and relevance of NOVELA, and the effect of NOVELA. According to our conceptual model, the intervention positively affects all three adult learning categories: reaction, learning, and behavior. Conclusion: Our findings suggest that HFCGs support the proposed NOVELA intervention and it appears to be an acceptable educational tool during hospice care (NCT04533594).

Original languageEnglish
Pages (from-to)945-951
Number of pages7
JournalJournal of palliative medicine
Volume25
Issue number6
DOIs
StatePublished - Jun 1 2022

Keywords

  • acceptability
  • family caregivers
  • feasibility
  • hospice
  • telenovela videos

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