TY - JOUR
T1 - Health data use, stewardship, and governance
T2 - Ongoing gaps and challenges: A report from AMIA's 2012 health policy meeting
AU - Hripcsak, George
AU - Bloomrosen, Meryl
AU - FlatelyBrennan, Patti
AU - Chute, Christopher G.
AU - Cimino, Jim
AU - Detmer, Don E.
AU - Edmunds, Margo
AU - Embi, Peter J.
AU - Goldstein, Melissa M.
AU - Hammond, William Ed
AU - Keenan, Gail M.
AU - Labkoff, Steve
AU - Murphy, Shawn
AU - Safran, Charlie
AU - Speedie, Stuart
AU - Strasberg, Howard
AU - Temple, Freda
AU - Wilcox, Adam B.
PY - 2014
Y1 - 2014
N2 - Large amounts of personal health data are being collected and made available through existing and emerging technological media and tools. While use of these data has significant potential to facilitate research, improve quality of care for individuals and populations, and reduce healthcare costs, many policy-related issues must be addressed before their full value can be realized. These include the need for widely agreed-on data stewardship principles and effective approaches to reduce or eliminate data silos and protect patient privacy. AMIA's 2012 Health Policy Meeting brought together healthcare academics, policy makers, and system stakeholders (including representatives of patient groups) to consider these topics and formulate recommendations. A review of a set of Proposed Principles of Health Data Use led to a set of findings and recommendations, including the assertions that the use of health data should be viewed as a public good and that achieving the broad benefits of this use will require understanding and support from patients.
AB - Large amounts of personal health data are being collected and made available through existing and emerging technological media and tools. While use of these data has significant potential to facilitate research, improve quality of care for individuals and populations, and reduce healthcare costs, many policy-related issues must be addressed before their full value can be realized. These include the need for widely agreed-on data stewardship principles and effective approaches to reduce or eliminate data silos and protect patient privacy. AMIA's 2012 Health Policy Meeting brought together healthcare academics, policy makers, and system stakeholders (including representatives of patient groups) to consider these topics and formulate recommendations. A review of a set of Proposed Principles of Health Data Use led to a set of findings and recommendations, including the assertions that the use of health data should be viewed as a public good and that achieving the broad benefits of this use will require understanding and support from patients.
UR - http://www.scopus.com/inward/record.url?scp=84894047235&partnerID=8YFLogxK
U2 - 10.1136/amiajnl-2013-002117
DO - 10.1136/amiajnl-2013-002117
M3 - Article
C2 - 24169275
AN - SCOPUS:84894047235
SN - 1067-5027
VL - 21
SP - 204
EP - 211
JO - Journal of the American Medical Informatics Association
JF - Journal of the American Medical Informatics Association
IS - 2
ER -