Feasibility of a healthcare system-based tetralogy of Fallot patient registry

Keyphrases

• Tetralogy of Fallot 100%
• Health Systems 100%
• Patient Registry 100%
• Systems-based 100%
• Online Survey 60%
• Patient-reported Outcomes 60%
• Adult Patients 40%
• Birth Mothers 40%
• Telephone Survey 20%
• Epidemiological Study 20%
• Cardiac Surgery 20%
• Median Time 20%
• Diagnostic Codes 20%
• Longitudinal Follow-up 20%
• Research Electronic Data Capture (REDCap) 20%
• Outcomes Research 20%
• Descriptive Statistics 20%
• Living with 20%
• University of North Carolina 20%
• Contact Data 20%
• Time Constraints 20%
• Linked Database 20%
• Electronic Data Entry 20%
• Recruitment Challenges 20%
• Survey Database 20%
• Operation Procedure 20%
• Code Query 20%
• Information Privacy Concerns 20%

Medicine and Dentistry

• Tetralogy of Fallot 100%
• Patient Registry 100%
• Patient-Reported Outcome 75%
• Patient with Tetralogy of Fallot 25%
• Diagnosis Code 25%