TY - JOUR
T1 - Family Caregiver Communication and Perceptions of Involvement in Hospice Care
AU - Bharadwaj, Archana
AU - Oliver, Debra Parker
AU - Washington, Karla T.
AU - Benson, Jacquelyn
AU - Pitzer, Kyle
AU - White, Patrick
AU - Demiris, George
N1 - Publisher Copyright:
Copyright 2024, Mary Ann Liebert, Inc., publishers.
PY - 2024/5/28
Y1 - 2024/5/28
N2 - Background: The burden of caregiving for family members is significant and becomes particularly challenging at end of life, with negative effects on mental health, including anxiety and depression. Research has shown caregivers need better communication with their health care team. Objectives: To evaluate the relationship between hospice team communication with caregivers and caregiver involvement in care. Methods: The purpose of this secondary analysis of data collected from a U.S.-based cluster crossover randomized trial was to evaluate whether caregiver-centered communication (Caregiver-Centered Communication Questionnaire) is associated with a caregiver's perceptions of involvement in care (Perceived Involved in Care Scale). A block-wise approach was used to estimate linear models, which were created using total scores and subscale scores. Results: Caregiver-centered communication was positively associated with perceptions of involvement in care. Conclusion: Skilled communication between hospice clinicians and family caregivers is critical in helping family members perception they are involved in the care of their loved one. There could be similar benefit in caregiver-centered communication during cancer treatment as well.
AB - Background: The burden of caregiving for family members is significant and becomes particularly challenging at end of life, with negative effects on mental health, including anxiety and depression. Research has shown caregivers need better communication with their health care team. Objectives: To evaluate the relationship between hospice team communication with caregivers and caregiver involvement in care. Methods: The purpose of this secondary analysis of data collected from a U.S.-based cluster crossover randomized trial was to evaluate whether caregiver-centered communication (Caregiver-Centered Communication Questionnaire) is associated with a caregiver's perceptions of involvement in care (Perceived Involved in Care Scale). A block-wise approach was used to estimate linear models, which were created using total scores and subscale scores. Results: Caregiver-centered communication was positively associated with perceptions of involvement in care. Conclusion: Skilled communication between hospice clinicians and family caregivers is critical in helping family members perception they are involved in the care of their loved one. There could be similar benefit in caregiver-centered communication during cancer treatment as well.
KW - caregiver
KW - caregiver communication
KW - communication
KW - hospice
KW - involvement in care
UR - http://www.scopus.com/inward/record.url?scp=85184056253&partnerID=8YFLogxK
U2 - 10.1089/jpm.2023.0576
DO - 10.1089/jpm.2023.0576
M3 - Article
C2 - 38271546
AN - SCOPUS:85184056253
SN - 1096-6218
VL - 27
SP - 614
EP - 621
JO - Journal of palliative medicine
JF - Journal of palliative medicine
IS - 5
ER -