Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder

  • J. M. Jamison
  • , E. Fourie
  • , P. M. Siper
  • , M. P. Trelles
  • , Julia George-Jones
  • , A. Buxbaum Grice
  • , J. Krata
  • , E. Holl
  • , J. Shaoul
  • , B. Hernandez
  • , L. Mitchell
  • , M. M. McKay
  • , J. D. Buxbaum
  • , Alexander Kolevzon

Research output: Contribution to journalArticlepeer-review

78 Scopus citations

Abstract

Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care. This study used a randomized controlled design to examine the efficacy of FPAs in a racially and ethnically diverse sample. Results demonstrate significantly increased knowledge of ASD and reduced levels of stress for caregivers who received the FPA intervention as compared to treatment as usual.

Original languageEnglish
Pages (from-to)1314-1322
Number of pages9
JournalJournal of autism and developmental disorders
Volume47
Issue number5
DOIs
StatePublished - May 1 2017

Keywords

  • Autism spectrum disorder
  • Caregiver stress
  • Family peer advocate
  • Minority

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