TY - JOUR
T1 - Evaluation of Physician and Nurse Dyad Training Procedures to Deliver a Palliative and End-of-Life Communication Intervention to Parents of Children with a Brain Tumor
AU - Hendricks-Ferguson, Verna L.
AU - Kane, Javier R.
AU - Pradhan, Kamnesh R.
AU - Shih, Chie Schin
AU - Gauvain, Karen M.
AU - Baker, Justin N.
AU - Haase, Joan E.
N1 - Funding Information:
We wish to convey appreciation to our expert palliative and end-of-life communication consultants during the planning and implementation of the training procedures: (a) Javier Kane, MD, at Scott & White Children’s Hospital in Temple, TX; (b) Pamela S. Hinds, PhD, RN, FAAN, at Children’s National Medical Center in Washington, DC; and (c) Richard M. Frankel, PhD, and Paul Helft, MD, at Indiana University School of Medicine in Indianapolis, IN. We also convey our sincere appreciation for the participation of the nurses and parent advisors during protocol development and training activities. We also thank the Alvin J. Siteman Cancer Center at Washington University School of Medicine and Barnes-Jewish Hospital in St Louis, Missouri, for providing biostatistical consultation and analysis service by statisitician, Dr. Esther Liu. The Siteman Cancer Center is supported in part by NCI Cancer Center Support Grant No. P30 CA91842.
Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The research project described was supported by Award Number R21NRO11071 from the National Institute of Nursing Research (NINR) and issued to Verna Hendricks-Ferguson (2009-2012). Also, this research award was issued under the American Recovery and Reinvestment Act of 2009 to the NINR. The content in this paper is the sole responsibility of the authors and does not necessarily represent the official views of the NINR or the National Institutes of Health.
Publisher Copyright:
© 2015, © 2015 by Association of Pediatric Hematology/Oncology Nurses.
PY - 2015/9/12
Y1 - 2015/9/12
N2 - When a child’s prognosis is poor, physicians and nurses (MDs/RNs) often struggle with initiating discussions about palliative and end-of-life care (PC/EOL) early in the course of illness trajectory. We describe evaluation of training procedures used to prepare MD/RN dyads to deliver an intervention entitled: Communication Plan: Early Through End of Life (COMPLETE) intervention. Our training was delivered to 5 pediatric neuro-oncologists and 8 pediatric nurses by a team of expert consultants (i.e., in medical ethics, communication, and PC/EOL) and parent advisors. Although half of the group received training in a 1-day program and half in a 2-day program, content for all participants included 4 modules: family assessment, goal-directed treatment planning, anticipatory guidance, and staff communication and follow-up. Evaluations included dichotomous ratings and qualitative comments on content, reflection, and skills practice for each module. Positive aspects of our training included parent advisers’ insights, emphasis on hope and non-abandonment messages, written materials to facilitate PC/EOL communication, and an MD/RN dyad approach. Lessons learned and challenges related to our training procedures will be described. Overall, the MDs and RNs reported that our PC/EOL communication-training procedures were helpful and useful. Future investigators should carefully plan training procedures for PC/EOL communication interventions.
AB - When a child’s prognosis is poor, physicians and nurses (MDs/RNs) often struggle with initiating discussions about palliative and end-of-life care (PC/EOL) early in the course of illness trajectory. We describe evaluation of training procedures used to prepare MD/RN dyads to deliver an intervention entitled: Communication Plan: Early Through End of Life (COMPLETE) intervention. Our training was delivered to 5 pediatric neuro-oncologists and 8 pediatric nurses by a team of expert consultants (i.e., in medical ethics, communication, and PC/EOL) and parent advisors. Although half of the group received training in a 1-day program and half in a 2-day program, content for all participants included 4 modules: family assessment, goal-directed treatment planning, anticipatory guidance, and staff communication and follow-up. Evaluations included dichotomous ratings and qualitative comments on content, reflection, and skills practice for each module. Positive aspects of our training included parent advisers’ insights, emphasis on hope and non-abandonment messages, written materials to facilitate PC/EOL communication, and an MD/RN dyad approach. Lessons learned and challenges related to our training procedures will be described. Overall, the MDs and RNs reported that our PC/EOL communication-training procedures were helpful and useful. Future investigators should carefully plan training procedures for PC/EOL communication interventions.
KW - end-of-life care
KW - palliative and end-of-life communication training
KW - palliative care
KW - parents of children with a brain tumor
UR - http://www.scopus.com/inward/record.url?scp=84938851596&partnerID=8YFLogxK
U2 - 10.1177/1043454214563410
DO - 10.1177/1043454214563410
M3 - Article
C2 - 25623029
AN - SCOPUS:84938851596
VL - 32
SP - 337
EP - 347
JO - Journal of Pediatric Oncology Nursing
JF - Journal of Pediatric Oncology Nursing
SN - 1043-4542
IS - 5
ER -