TY - JOUR
T1 - Ethical issues in the care of adolescent and young adult oncology patients
AU - Sisk, Bryan A.
AU - Canavera, Kristin
AU - Sharma, Akshay
AU - Baker, Justin N.
AU - Johnson, Liza Marie
N1 - Funding Information:
We would like to thank Keith Laycock PhD of St. Jude Scientific Editing for his valuable contributions in editing this manuscript. We thank ALSAC for their institutional support.
Publisher Copyright:
© 2019 Wiley Periodicals, Inc.
PY - 2019/5
Y1 - 2019/5
N2 - The diagnosis and treatment of cancer leads to short-term and long-term challenges for every patient. This is especially true for adolescents and young adults (AYAs) with cancer who strive to gain independence, autonomy, confidence, and social status while developing into adulthood. In this article, we review prominent ethical issues in AYA oncology that are related to autonomy, shared decision-making, care refusal or abandonment, end-of-life care, truth telling, and fertility preservation. Clinicians should recognize that AYA patients develop at their own pace; the onus lies with clinicians to determine the patient's interests, values, maturity, and desire to participate in decision-making.
AB - The diagnosis and treatment of cancer leads to short-term and long-term challenges for every patient. This is especially true for adolescents and young adults (AYAs) with cancer who strive to gain independence, autonomy, confidence, and social status while developing into adulthood. In this article, we review prominent ethical issues in AYA oncology that are related to autonomy, shared decision-making, care refusal or abandonment, end-of-life care, truth telling, and fertility preservation. Clinicians should recognize that AYA patients develop at their own pace; the onus lies with clinicians to determine the patient's interests, values, maturity, and desire to participate in decision-making.
KW - adolescent and young adult oncology
KW - bioethics
KW - clinical ethics
UR - http://www.scopus.com/inward/record.url?scp=85059660751&partnerID=8YFLogxK
U2 - 10.1002/pbc.27608
DO - 10.1002/pbc.27608
M3 - Review article
C2 - 30623573
AN - SCOPUS:85059660751
VL - 66
JO - Pediatric Blood and Cancer
JF - Pediatric Blood and Cancer
SN - 1545-5009
IS - 5
M1 - e27608
ER -