TY - JOUR
T1 - Engaging Youth in Bladder Health Research
T2 - Perspectives from a National Consortium’s Young Women’s Health Council
AU - Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium
AU - El-Fahmawi, Ayah
AU - Schwalb, Jessica
AU - Samuel, Ciearria
AU - Davidson, Hannah
AU - Lumbantobing, Johanna
AU - Hebert-Beirne, Jeni
AU - Scal, Peter
AU - Wheeler, Leena
AU - Cuneo, Fairis
AU - Phillips, Janice
AU - Cunningham, Shayna D.
AU - Mueller, Elizabeth R.
AU - Acevedo-Alvarez, Marian
AU - Fitzgerald, Colleen M.
AU - Hardacker, Cecilia T.
AU - Griffith, James W.
AU - Kenton, Kimberly Sue
AU - Simon, Melissa
AU - Brown, Oluwateniola
AU - Geynisman-Tan, Julia
AU - Mueller, Margaret
AU - Markland, Alayne D.
AU - Vaughan, Camille P.
AU - Coyne-Beasley, Tamera
AU - Burgio, Kathryn L.
AU - Lewis, Cora E.
AU - Williams, Beverly Rosa
AU - Lukacz, Emily S.
AU - Gahagan, Sheila
AU - LaCoursiere, D. Yvette
AU - Nodora, Jesse
AU - Low, Lisa Kane
AU - Miller, Janis M.
AU - Smith, Abby
AU - McGwin, Gerald
AU - Rudser, Kyle D.
AU - Brady, Sonya S.
AU - Chu, Haitao
AU - Fok, Cynthia S.
AU - Harlow, Bernard L.
AU - Scal, Peter
AU - Rockwood, Todd
AU - Newman, Diane K.
AU - Smith, Ariana L.
AU - Berry, Amanda
AU - Bilger, Andrea
AU - Lipman, Terri H.
AU - Klusaritz, Heather
AU - Stapleton, Ann E.
AU - Wyman, Jean F.
AU - Sutcliffe, Siobhan
AU - James, Aimee S.
AU - Lowder, Jerry L.
AU - Meister, Melanie R.
AU - Rickey, Leslie M.
AU - Camenga, Deepa R.
AU - Cunningham, Shayna D.
AU - Brubaker, Linda
AU - Barthold, Julia M.D.
N1 - Publisher Copyright:
© 2025 Johns Hopkins University Press.
PY - 2025/6
Y1 - 2025/6
N2 - Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women’s Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council’s activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.
AB - Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women’s Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council’s activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.
KW - Adolescent and Young Adults
KW - Bladder Health
KW - Community Engagement
KW - Community Perspective
KW - Youth Advisory Board
UR - https://www.scopus.com/pages/publications/105012514497
U2 - 10.1353/cpr.2025.a965366
DO - 10.1353/cpr.2025.a965366
M3 - Article
C2 - 40718925
AN - SCOPUS:105012514497
SN - 1557-0541
VL - 19
SP - 271
EP - 277
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
IS - 2
ER -