Abstract

There are few centers with combined pediatric and adult neurofibromatosis 1 practices and transition of care programming. Using an electronic health records-based approach, we found an early death peak in the fourth decade of life largely owing to malignancy, underscoring the need for integrated neurological training and practice across the lifespan.

Original languageEnglish
Article number114413
JournalJournal of Pediatrics
Volume277
DOIs
StatePublished - Feb 2025

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