3 Scopus citations

Abstract

Objective: The purpose of this manuscript is to detail development and initial usability testing of an e-toolkit designed to provide skills and knowledge around self-management behaviors for individuals living with systemic lupus erythematosus. Methods: Researchers worked with a steering committee of patients and providers to (1) develop a clickable prototype of an e-toolkit and (2) conduct alpha (individuals not affiliated with an academic clinic as patient or provider) and beta (individual patients with systemic lupus erythematosus as well as members of the clinic healthcare team and individuals who work in patient advocacy organizations) usability testing through semistructured interviews. Results: During the review of the e-toolkit, the feedback provided by participants in both alpha and beta groups centered on two overarching themes: (1) improving user interface and materials and (2) integration of information and supports between toolkit and clinical personnel. Conclusion: Digital approaches that are tailored to individual symptom variation and integrated with a clinical system have the opportunity to enhance ongoing clinical care. These findings support movement toward integrated, team-based care models, tailored digital resources, and use of expanded virtual interaction options to ensure on-going engagement between healthcare providers and systemic lupus erythematosus patients.

Original languageEnglish
JournalDigital Health
Volume7
DOIs
StatePublished - 2021

Keywords

  • Systemic lupus erythematosus
  • behavior change
  • digital tools
  • health-related quality of life
  • mhealth
  • patient-centered
  • qualitative research
  • self-management
  • social support
  • tailoring

Fingerprint

Dive into the research topics of 'Development of a digital toolkit to improve quality of life of patients with systemic lupus erythematosus'. Together they form a unique fingerprint.

Cite this