TY - JOUR
T1 - Developing a patient- And family-centered research agenda for hospital medicine- And improving hospital outcomes through patient engagement (i-HOPE) study
AU - Harrison, James D.
AU - Archuleta, Michelle
AU - Avitia, Esther
AU - Banta, Jim
AU - Benn, Joy
AU - Burden, Marisha
AU - Chopra, Vineet
AU - Coker, Rebecca
AU - Eid, Shaker
AU - Fang, Margaret C.
AU - Fletcher, Kathlyn
AU - Hagan, Julie
AU - Jaranilla, Jawali
AU - Mullick, Monalisa
AU - Nyenpan, Christopher
AU - Silva, Lali
AU - Wurst, Melissa
AU - Ziegler, Georgiann
AU - Leykum, Luci
N1 - Funding Information:
The authors would like to thank all patients, caregivers, and stakeholders who completed the survey. The authors also would like to acknowledge the organizations and individuals who participated in this study (see Appendix Document 4 for full list). At SHM, the authors would like to specifically thank Claudia Stahl, Jenna Goldstein, Kevin Vuernick, Dr Brad Sharpe, and Dr Larry Wellikson for their support. Disclosures: Drs Leykum and Fletcher receive salary support from the Department of Veterans Affairs. Dr Chopra, Ms Wurst, Ms Hagan, Ms Archuleta, Ms Avita, Dr Fang, Dr Harrison, Mr Banta, Ms Coker, Dr.Fletcher, Dr.Jawali, Dr Mullick, Ms Ziegler, and Dr Eid received funding from the Patient Centered Outcomes Research Institute during the conduct of this study. Dr Burden, Mr Nyenpan, Ms Silva, and Ms Benn have nothing to disclose. Funding: This study was funded by a Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (#3939).
Funding Information:
The Society of Hospital Medicine (SHM) provided additional administrative, logistical, and technical support. The authors would like to thank all patients, caregivers, and stakeholders who completed the survey. The authors also would like to acknowledge the organizations and individuals who participated in this study (see Appendix Document 4 for full list). At SHM, the authors would like to specifically thank Claudia Stahl, Jenna Goldstein, Kevin Vuernick, Dr Brad Sharpe, and Dr Larry Wellikson for their support. Disclosures: Drs Leykum and Fletcher receive salary support from the Department of Veterans Affairs. Dr Chopra, Ms Wurst, Ms Hagan, Ms Archuleta, Ms Avita, Dr Fang, Dr Harrison, Mr Banta, Ms Coker, Dr.Fletcher, Dr.Jawali, Dr Mullick, Ms Ziegler, and Dr Eid received funding from the Patient Centered Outcomes Research Institute during the conduct of this study. Dr Burden, Mr Nyenpan, Ms Silva, and Ms Benn have nothing to disclose. This study was funded by a Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (#3939).
Publisher Copyright:
© 2020 Society of Hospital Medicine
PY - 2020/6
Y1 - 2020/6
N2 - BACKGROUND: Patient, caregiver, and other stakeholder priorities have not been robustly incorporated into directing hospital-based research and improvement efforts. OBJECTIVE: To systematically engage stakeholders to identify important questions of adult hospitalized patients and to create a prioritized research agenda for improving the care of adult hospitalized patients. DESIGN: A collaborative approach to stakeholder engagement and research question prioritization. SETTING & PARTICIPANTS: Researchers and patients from eight academic and community medical centers partnered with 39 patient, caregiver, professional, research, and medical organizations. METHODS: We applied established standards for formulating research questions and stakeholder engagement. This included: a multi-pronged, inclusive patient and stakeholder engagement strategy; surveys of patients and stakeholder organizations to identify important questions; content analysis of submitted questions; and a 2-day in-person meeting with stakeholder organization representatives and patient partners to prioritize and rank submitted questions. RESULTS: A total of 499 respondents including patients, caregivers, healthcare providers, and researchers from 39 organizations submitted 782 research questions. These questions were categorized into 70 distinct topics-52 that were health system related and 18 disease specific. From these categories, we identified 36 common questions; the final 11 questions were identified, prioritized and ranked during an in-person priority-setting meeting. Questions considered highest priority related to ensuring shared treatment and goals of care decision making and improving hospital discharge handoff to other care facilities and providers. CONCLUSION: We identified 11 prioritized research questions that should galvanize funders, researchers, and patient advocates to address and improve the care of hospitalized adult patients.
AB - BACKGROUND: Patient, caregiver, and other stakeholder priorities have not been robustly incorporated into directing hospital-based research and improvement efforts. OBJECTIVE: To systematically engage stakeholders to identify important questions of adult hospitalized patients and to create a prioritized research agenda for improving the care of adult hospitalized patients. DESIGN: A collaborative approach to stakeholder engagement and research question prioritization. SETTING & PARTICIPANTS: Researchers and patients from eight academic and community medical centers partnered with 39 patient, caregiver, professional, research, and medical organizations. METHODS: We applied established standards for formulating research questions and stakeholder engagement. This included: a multi-pronged, inclusive patient and stakeholder engagement strategy; surveys of patients and stakeholder organizations to identify important questions; content analysis of submitted questions; and a 2-day in-person meeting with stakeholder organization representatives and patient partners to prioritize and rank submitted questions. RESULTS: A total of 499 respondents including patients, caregivers, healthcare providers, and researchers from 39 organizations submitted 782 research questions. These questions were categorized into 70 distinct topics-52 that were health system related and 18 disease specific. From these categories, we identified 36 common questions; the final 11 questions were identified, prioritized and ranked during an in-person priority-setting meeting. Questions considered highest priority related to ensuring shared treatment and goals of care decision making and improving hospital discharge handoff to other care facilities and providers. CONCLUSION: We identified 11 prioritized research questions that should galvanize funders, researchers, and patient advocates to address and improve the care of hospitalized adult patients.
UR - http://www.scopus.com/inward/record.url?scp=85086419196&partnerID=8YFLogxK
U2 - 10.12788/jhm.3386
DO - 10.12788/jhm.3386
M3 - Article
C2 - 32490806
AN - SCOPUS:85086419196
SN - 1553-5592
VL - 15
SP - 331
EP - 337
JO - Journal of Hospital Medicine
JF - Journal of Hospital Medicine
IS - 6
ER -