TY - JOUR
T1 - Cystic Fibrosis Foundation otolaryngology care multidisciplinary consensus recommendations
AU - Kimple, Adam J.
AU - Senior, Brent A.
AU - Naureckas, Edward T.
AU - Gudis, David A.
AU - Meyer, Ted
AU - Hempstead, Sarah E.
AU - Resnick, Helaine E.
AU - Albon, Dana
AU - Barfield, Wayne
AU - Benoit, Margo Mc Kenna
AU - Beswick, Daniel M.
AU - Callard, Eliza
AU - Cofer, Shelagh
AU - Downer, Veronica
AU - Elson, E. Claire
AU - Garinis, Angela
AU - Halderman, Ashleigh
AU - Hamburger, Lisa
AU - Helmick, Meagan
AU - McCown, Michael
AU - McKinzie, Cameron J.
AU - Phan, Hanna
AU - Rodriguez, Kenneth
AU - Rubenstein, Ronald C.
AU - Severin, Ashley
AU - Shah, Gopi
AU - Shenoy, Ambika
AU - Sprouse, Brittney
AU - Virgin, Frank
AU - Woodworth, Bradford A.
AU - Lee, Stella E.
N1 - Publisher Copyright:
© 2022 The Authors. International Forum of Allergy & Rhinology published by Wiley Periodicals LLC on behalf of American Academy of Otolaryngic Allergy and American Rhinologic Society.
PY - 2022/9
Y1 - 2022/9
N2 - Background: Cystic fibrosis (CF) is a multisystem disease that often requires otolaryngology care. Individuals with CF commonly have chronic rhinosinusitis but also present with hearing loss and dysphonia. Given these manifestations of CF, otolaryngologists are frequently involved in the care of patients with CF; however, there is limited consensus on optimal management of sinonasal, otologic, and laryngologic symptoms. Methods: The Cystic Fibrosis Foundation convened a multidisciplinary team of otolaryngologists, pulmonologists, audiologists, pharmacists, a social worker, a nurse coordinator, a respiratory therapist, two adults with CF, and a caregiver of a child with CF to develop consensus recommendations. Workgroups developed draft recommendation statements based on a systematic literature review, and a ≥80% consensus was required for acceptance of each recommendation statement. Results: The committee voted on 25 statements. Eleven statements were adopted recommending a treatment or intervention, while five statements were formulated recommending against a specific treatment or intervention. The committee recommended eight statements as an option for select patients in certain circumstances, and one statement did not reach consensus. Conclusion: These multidisciplinary consensus recommendations will help providers navigate decisions related to otolaryngology consultation, medical and surgical management of CF-CRS, hearing, and voice in individuals with CF. A collaborative and multidisciplinary approach is advocated to best care for our patients with CF. Future clinical research is needed utilizing standardized, validated outcomes with comprehensive reporting of patient outcome, effects of modulator therapies, and genetic characteristics to help continue to advance care, decrease morbidity, and improve the quality of life for individuals with CF.
AB - Background: Cystic fibrosis (CF) is a multisystem disease that often requires otolaryngology care. Individuals with CF commonly have chronic rhinosinusitis but also present with hearing loss and dysphonia. Given these manifestations of CF, otolaryngologists are frequently involved in the care of patients with CF; however, there is limited consensus on optimal management of sinonasal, otologic, and laryngologic symptoms. Methods: The Cystic Fibrosis Foundation convened a multidisciplinary team of otolaryngologists, pulmonologists, audiologists, pharmacists, a social worker, a nurse coordinator, a respiratory therapist, two adults with CF, and a caregiver of a child with CF to develop consensus recommendations. Workgroups developed draft recommendation statements based on a systematic literature review, and a ≥80% consensus was required for acceptance of each recommendation statement. Results: The committee voted on 25 statements. Eleven statements were adopted recommending a treatment or intervention, while five statements were formulated recommending against a specific treatment or intervention. The committee recommended eight statements as an option for select patients in certain circumstances, and one statement did not reach consensus. Conclusion: These multidisciplinary consensus recommendations will help providers navigate decisions related to otolaryngology consultation, medical and surgical management of CF-CRS, hearing, and voice in individuals with CF. A collaborative and multidisciplinary approach is advocated to best care for our patients with CF. Future clinical research is needed utilizing standardized, validated outcomes with comprehensive reporting of patient outcome, effects of modulator therapies, and genetic characteristics to help continue to advance care, decrease morbidity, and improve the quality of life for individuals with CF.
KW - FESS
KW - chronic rhinosinusitis
KW - cystic fibrosis
KW - dysphonia
KW - evidence-based medicine
KW - sinus
KW - voice and allergy
UR - http://www.scopus.com/inward/record.url?scp=85125051770&partnerID=8YFLogxK
U2 - 10.1002/alr.22974
DO - 10.1002/alr.22974
M3 - Article
C2 - 35089650
AN - SCOPUS:85125051770
SN - 2042-6976
VL - 12
SP - 1089
EP - 1103
JO - International Forum of Allergy and Rhinology
JF - International Forum of Allergy and Rhinology
IS - 9
ER -