TY - JOUR
T1 - Creating a pediatric advisory board for engaging youth in pediatric health research
T2 - A case study
AU - Orellana, Minerva
AU - Valdez-Soto, Miguel
AU - Brockman, Tabetha A.
AU - Balls-Berry, Joyce E.
AU - Zavala Rocha, Maria Guadalupe
AU - Allyse, Megan A.
AU - Dsouza, Karen N.
AU - Riggan, Kirsten A.
AU - Juhn, Young
AU - Patten, Christi
N1 - Publisher Copyright:
© The Author(s), 2021.
PY - 2021
Y1 - 2021
N2 - Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11-17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research.
AB - Youth are an understudied population requiring additional safeguards when participating in research. Their input is necessary to facilitate participation and interest in studies. To address this, Mayo Clinic established one of the first pediatric advisory boards (PAB) comprised of 18 diverse youth aged 11-17. The PAB members participated in quarterly meetings (in person and then by video conference with the advent of COVID-19) where they provided feedback to researchers on recruitment strategies, study materials, and procedures. The PAB meetings fostered bidirectional conversations with researchers on several health research topics, including mental health. Youth advisory boards can promote engagement in pediatric research.
KW - Community-engaged research
KW - community
KW - human subjects research
KW - pediatric advisory board
KW - youth
UR - http://www.scopus.com/inward/record.url?scp=85105826679&partnerID=8YFLogxK
U2 - 10.1017/cts.2021.399
DO - 10.1017/cts.2021.399
M3 - Article
AN - SCOPUS:85105826679
SN - 2059-8661
VL - 5
JO - Journal of Clinical and Translational Science
JF - Journal of Clinical and Translational Science
IS - 1
M1 - e113
ER -