Co-designing and piloting educational materials with patients and healthcare providers for syncope in the emergency department

Colleen A. McMullen, Mark V. Williams, Susan S. Smyth, Jessica Miller Clouser, Jing Li

Research output: Contribution to journalArticlepeer-review

1 Scopus citations


Objective: The purpose of this study was to identify barriers and design interventions to promote adherence to 2017 Guideline for Syncope Evaluation and Management. Methods: Focus groups and interviews were conducted to understand preferences, needs and barriers from patients and providers. Educational materials for patients were developed following a co-design, iterative process with patients, providers and hospital staff. The academic medical center's (AMC) Patient Education Department and Patient & Family Advisory Council reviewed materials to ensure health literacy. We piloted usability and feasibility of delivering the materials to a small cohort of patients. Results: From Feb to March 2020, 24 patients were asked to watch the video. Twenty-two watched the intake video; of those 8 watched the discharge video. 95% of participants found the intake video informational and 86% would recommend it to others; 100% found the discharge video informational and would recommend it to others. Patients who watched both videos reported the videos improved their overall stay. Conclusion: Our study described a patient-clinician-researcher codesign process and demonstrated feasibility of tools developed to communicate risk and uncertainty with patients and facilitate shared decision making in syncope evaluation. Innovation: Engaging end users in developing interventions is critical for sustained practice change.

Original languageEnglish
Article number100131
JournalPEC Innovation
StatePublished - Dec 2023


  • Co-design
  • End-user engagement
  • Guideline adherence
  • Patient education
  • Syncope


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