TY - JOUR
T1 - Can 7 or 30-day recall questions capture self-reported lower urinary tract symptoms accurately?
AU - LURN Study Group
AU - Flynn, Kathryn E.
AU - Mansfield, Sarah A.
AU - Smith, Abigail R.
AU - Gillespie, Brenda W.
AU - Bradley, Catherine S.
AU - Cella, David
AU - Quentin Clemens, J.
AU - Helmuth, Margaret E.
AU - Henry Lai, H.
AU - Kirkali, Ziya
AU - Talaty, Pooja
AU - Weinfurt, Kevin P.
N1 - Funding Information:
Accepted for publication April 18, 2019. The corresponding author certifies that, when applicable, a statement(s) has been included in the manuscript documenting institutional review board, ethics committee or ethical review board study approval; principles of Helsinki Declaration were followed in lieu of formal ethics committee approval; institutional animal care and use committee approval; all human subjects provided written informed consent with guarantees of confidentiality; IRB approved protocol number; animal approved project number. Supported by the National Institute of Diabetes and Digestive and Kidney Diseases through cooperative agreement Grants DK097780, DK097772, DK097779, DK099932, DK100011, DK100017, DK097776 and DK099879, and National Institutes of Health National Center for Advancing Translational Sciences Grant UL1TR001422 (Northwestern University). This is publication number 21 of the Symptoms of Lower Urinary Tract Dysfunction Research Network. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. No direct or indirect commercial, personal, academic, political, religious or ethical incentive is associated with publishing this article. * Correspondence: Department of Medicine, Medical College of Wisconsin, 9200 West Wisconsin Ave., Milwaukee, Wisconsin 53226 (telephone: 414-805-8189; e-mail: kflynn@mcw.edu).
Funding Information:
Supported by the National Institute of Diabetes and Digestive and Kidney Diseases through cooperative agreement Grants DK097780, DK097772, DK097779, DK099932, DK100011, DK100017, DK097776 and DK099879, and National Institutes of Health National Center for Advancing Translational Sciences Grant UL1TR001422 (Northwestern University).
Publisher Copyright:
© 2019 by AMERICAN UROLOGICAL ASSOCIATION EDUCATION AND RESEARCH, INC.
PY - 2019/10
Y1 - 2019/10
N2 - Purpose: Self-reported measurement tools often provide a recall period, eg “In the past 7 days.” For lower urinary tract symptoms the concordance of end of day (daily) reports with 7 and 30-day recalled reports is unknown to our knowledge. We evaluated how accurately 7 or 30-day recall questions capture lower urinary tract symptoms. Materials and Methods: The 261 female and 254 male participants were recruited from a total of 6 United States tertiary care sites. We evaluated 18 items representing 7 symptoms covering storage, voiding and post-micturition symptoms. Item responses on the daily forms were averaged for a 7 or a 30-day period and compared to the corresponding 7 or 30-day recall version of the item. Analyses were item and gender specific. Within person concordance was assessed using the Pearson correlation. Bias (systematic overreporting or underreporting) was calculated as the difference between the recalled item and the averaged daily item score, and reported as a percent of the item scale. Results: All correlations exceeded 0.60. Correlations between averaged daily reports and recalled reports ranged from 0.72 to 0.89 for 7 days and from 0.71 to 0.91 for 30 days among women, and from 0.68 to 0.90 and 0.68 to 0.95, respectively, among men. Most items did not show systematic bias and the median percent bias did not exceed 10% for any item. However, bias exceeding ±10% for some items was observed in a subset of individuals. Conclusions: Recalled reports during the 7 and 30 days tracked well with averaged daily reports for men and women. Systematic bias was minimal, suggesting that 7 and 30-day recall periods for self-reported lower urinary tract symptoms are reasonable.
AB - Purpose: Self-reported measurement tools often provide a recall period, eg “In the past 7 days.” For lower urinary tract symptoms the concordance of end of day (daily) reports with 7 and 30-day recalled reports is unknown to our knowledge. We evaluated how accurately 7 or 30-day recall questions capture lower urinary tract symptoms. Materials and Methods: The 261 female and 254 male participants were recruited from a total of 6 United States tertiary care sites. We evaluated 18 items representing 7 symptoms covering storage, voiding and post-micturition symptoms. Item responses on the daily forms were averaged for a 7 or a 30-day period and compared to the corresponding 7 or 30-day recall version of the item. Analyses were item and gender specific. Within person concordance was assessed using the Pearson correlation. Bias (systematic overreporting or underreporting) was calculated as the difference between the recalled item and the averaged daily item score, and reported as a percent of the item scale. Results: All correlations exceeded 0.60. Correlations between averaged daily reports and recalled reports ranged from 0.72 to 0.89 for 7 days and from 0.71 to 0.91 for 30 days among women, and from 0.68 to 0.90 and 0.68 to 0.95, respectively, among men. Most items did not show systematic bias and the median percent bias did not exceed 10% for any item. However, bias exceeding ±10% for some items was observed in a subset of individuals. Conclusions: Recalled reports during the 7 and 30 days tracked well with averaged daily reports for men and women. Systematic bias was minimal, suggesting that 7 and 30-day recall periods for self-reported lower urinary tract symptoms are reasonable.
KW - Lower urinary tract symptoms
KW - Mental recall
KW - Observer variation
KW - Time factors
UR - http://www.scopus.com/inward/record.url?scp=85075805518&partnerID=8YFLogxK
U2 - 10.1097/JU.0000000000000310
DO - 10.1097/JU.0000000000000310
M3 - Article
C2 - 31039099
AN - SCOPUS:85075805518
SN - 0022-5347
VL - 202
SP - 770
EP - 778
JO - The Journal of Urology
JF - The Journal of Urology
IS - 4
ER -