TY - JOUR
T1 - Barriers and facilitators to qualitative data sharing in the United States
T2 - A survey of qualitative researchers
AU - Mozersky, Jessica
AU - McIntosh, Tristan
AU - Walsh, Heidi A.
AU - Parsons, Meredith V.
AU - Goodman, Melody
AU - DuBois, James M.
N1 - Publisher Copyright:
© 2021 Mozersky et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
PY - 2021/12
Y1 - 2021/12
N2 - Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations.
AB - Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations.
UR - http://www.scopus.com/inward/record.url?scp=85121997438&partnerID=8YFLogxK
U2 - 10.1371/journal.pone.0261719
DO - 10.1371/journal.pone.0261719
M3 - Article
C2 - 34972126
AN - SCOPUS:85121997438
SN - 1932-6203
VL - 16
JO - PloS one
JF - PloS one
IS - 12 December
M1 - e0261719
ER -