Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers

Jessica Mozersky, Tristan McIntosh, Heidi A. Walsh, Meredith V. Parsons, Melody Goodman, James M. DuBois

Research output: Contribution to journalArticlepeer-review

16 Scopus citations

Abstract

Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations.

Original languageEnglish
Article numbere0261719
JournalPloS one
Volume16
Issue number12 December
DOIs
StatePublished - Dec 2021

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