TY - JOUR
T1 - An interdisciplinary outreach model of African American recruitment for Alzheimer's disease research
AU - Williams, Monique M.
AU - Meisel, Marie M.
AU - Williams, James
AU - Morris, John C.
N1 - Funding Information:
shows the organizational structure involved in our minority recruitment efforts. Our African American recruitment program was supported by a network of sustained community collaborators, especially the local chapter of the Alzheimer’s Association, an African American nurse sorority, and a church-based AD support group.
Funding Information:
This work was supported by grants from the National Institutes of Health (P50AG05681, P01AG03991) from the National Institute on Aging (KL2RR024994, a component of UL1RR024992) from the National Center for Research Resources, and a generous gift from the Alan and Edith Wolff Charitable Trust.
PY - 2011/6
Y1 - 2011/6
N2 - Purpose: The African American Outreach Satellite (Satellite) provides educational outreach to facilitate African American recruitment for longitudinal studies at the Washington University Alzheimer's Disease Research Center (ADRC). This descriptive article characterizes the Satellite's recruitment methods, plan for community engagement, results of recruitment efforts, and potential for replication.Design and Methods: The Satellite developed a comprehensive outreach and recruitment plan that identifies and addresses barriers to research participation. The Satellite conducts community outreach and recruitment programs and training for health care providers.Results: Enrollment of cognitively healthy and mildly demented African Americans for participation in all ADRC studies increased following implementation of the recruitment plan. Current African American participation rates for ADRC studies include 39% for lumbar puncture, 43% for positron emission tomography with Pittsburgh Compound-B, 52% for magnetic resonance imaging, 95% for apolipoprotein E genotype testing, and 100% for clinical and cognitive assessment.Implications: The Satellite reduces barriers to research participation, encourages retention through sustained interactions with participants and their families, and develops lasting partnerships with community organizations and health professionals who care for African American elders.
AB - Purpose: The African American Outreach Satellite (Satellite) provides educational outreach to facilitate African American recruitment for longitudinal studies at the Washington University Alzheimer's Disease Research Center (ADRC). This descriptive article characterizes the Satellite's recruitment methods, plan for community engagement, results of recruitment efforts, and potential for replication.Design and Methods: The Satellite developed a comprehensive outreach and recruitment plan that identifies and addresses barriers to research participation. The Satellite conducts community outreach and recruitment programs and training for health care providers.Results: Enrollment of cognitively healthy and mildly demented African Americans for participation in all ADRC studies increased following implementation of the recruitment plan. Current African American participation rates for ADRC studies include 39% for lumbar puncture, 43% for positron emission tomography with Pittsburgh Compound-B, 52% for magnetic resonance imaging, 95% for apolipoprotein E genotype testing, and 100% for clinical and cognitive assessment.Implications: The Satellite reduces barriers to research participation, encourages retention through sustained interactions with participants and their families, and develops lasting partnerships with community organizations and health professionals who care for African American elders.
KW - Black
KW - Dementia
KW - Education and training
KW - Teams/interdisciplinary/multidisciplinary
UR - https://www.scopus.com/pages/publications/79956065132
U2 - 10.1093/geront/gnq098
DO - 10.1093/geront/gnq098
M3 - Article
C2 - 21173436
AN - SCOPUS:79956065132
SN - 0016-9013
VL - 51
SP - S134-S141
JO - Gerontologist
JF - Gerontologist
IS - SUPPL. 1
ER -