TY - JOUR
T1 - Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer
AU - Srinivas, Meghana
AU - Kaye, Erica C.
AU - Blazin, Lindsay J.
AU - Baker, Justin N.
AU - Mack, Jennifer W.
AU - DuBois, James M.
AU - Sisk, Bryan A.
N1 - Publisher Copyright:
© 2022 by the authors.
PY - 2023/1
Y1 - 2023/1
N2 - Effective communication is integral to patient and family-centered care in pediatric and adolescent and young adult (AYA) oncology and improving healthcare delivery and outcomes. There is limited knowledge about whether AYAs and parents have similar communication preferences and needs. By eliciting and comparing communication advice from AYAs and parents, we can identify salient guidance for how clinicians can better communicate. We performed secondary analysis of semi-structured interviews from 2 qualitative communication studies. In one study, 80 parents of children with cancer during treatment, survivorship, or bereavement were interviewed. In the second study, AYAs with cancer during treatment or survivorship were interviewed. We asked AYAs and parents to provide communication advice for oncology clinicians. Using thematic analysis, we identified categories of advice related to three overarching themes: interpersonal relationships, informational preferences, and delivery of treatment, resources, and medical care. AYAs and parents provided similar advice about the need for compassion, strong connections, hopefulness, commitment, and transparent honesty However, AYAs placed additional emphasis on clinicians maintaining a calm demeanor.
AB - Effective communication is integral to patient and family-centered care in pediatric and adolescent and young adult (AYA) oncology and improving healthcare delivery and outcomes. There is limited knowledge about whether AYAs and parents have similar communication preferences and needs. By eliciting and comparing communication advice from AYAs and parents, we can identify salient guidance for how clinicians can better communicate. We performed secondary analysis of semi-structured interviews from 2 qualitative communication studies. In one study, 80 parents of children with cancer during treatment, survivorship, or bereavement were interviewed. In the second study, AYAs with cancer during treatment or survivorship were interviewed. We asked AYAs and parents to provide communication advice for oncology clinicians. Using thematic analysis, we identified categories of advice related to three overarching themes: interpersonal relationships, informational preferences, and delivery of treatment, resources, and medical care. AYAs and parents provided similar advice about the need for compassion, strong connections, hopefulness, commitment, and transparent honesty However, AYAs placed additional emphasis on clinicians maintaining a calm demeanor.
KW - adolescent and young adult
KW - cancer survivorship
KW - communication
KW - patient-centered care
KW - pediatric oncology
UR - http://www.scopus.com/inward/record.url?scp=85146759395&partnerID=8YFLogxK
U2 - 10.3390/children10010007
DO - 10.3390/children10010007
M3 - Article
C2 - 36670560
AN - SCOPUS:85146759395
SN - 2227-9067
VL - 10
JO - Children
JF - Children
IS - 1
M1 - 7
ER -