TY - JOUR
T1 - Accounts of Family Conflict in Home Hospice Care
T2 - The Central Role of Autonomy for Informal Caregiver Resilience
AU - Benson, Jacquelyn J.
AU - Parker Oliver, Debra
AU - Demiris, George
AU - Washington, Karla
N1 - Publisher Copyright:
© The Author(s) 2019.
PY - 2019/5/1
Y1 - 2019/5/1
N2 - End-of-life caregiving is a highly stressful experience often fraught with conflict and tension. However, little is known about the ways family conflict manifests for informal caregivers of home hospice patients (IHCs). Framed by relational dialectics theory, the purpose of this study was to provide nurses and other health care professionals with an empirical understanding of how IHCs experience family conflict and tensions associated with caregiving. A second aim was to determine what strategies IHCs use to manage these family conflicts. Data used in this qualitative secondary analysis were originally collected as part of a randomized clinical trial of an IHC support intervention. Based on thematic analysis of data from 25 IHCs who reported family conflict, a conceptual model of caregiver resilience was developed from the themes and categories that emerged during the coding stage. Autonomy was identified as a central tension. IHCs used several strategies to address family conflict including communication, formal support, and emotional self-care.
AB - End-of-life caregiving is a highly stressful experience often fraught with conflict and tension. However, little is known about the ways family conflict manifests for informal caregivers of home hospice patients (IHCs). Framed by relational dialectics theory, the purpose of this study was to provide nurses and other health care professionals with an empirical understanding of how IHCs experience family conflict and tensions associated with caregiving. A second aim was to determine what strategies IHCs use to manage these family conflicts. Data used in this qualitative secondary analysis were originally collected as part of a randomized clinical trial of an IHC support intervention. Based on thematic analysis of data from 25 IHCs who reported family conflict, a conceptual model of caregiver resilience was developed from the themes and categories that emerged during the coding stage. Autonomy was identified as a central tension. IHCs used several strategies to address family conflict including communication, formal support, and emotional self-care.
KW - family conflict
KW - home hospice
KW - informal caregivers
KW - palliative care
KW - resilience
UR - http://www.scopus.com/inward/record.url?scp=85061835770&partnerID=8YFLogxK
U2 - 10.1177/1074840719828091
DO - 10.1177/1074840719828091
M3 - Article
C2 - 30773970
AN - SCOPUS:85061835770
SN - 1074-8407
VL - 25
SP - 190
EP - 218
JO - Journal of Family Nursing
JF - Journal of Family Nursing
IS - 2
ER -