TY - JOUR
T1 - A mixed-methods study exploring the benefits, drawbacks, and utilization of data in care
T2 - Findings from the EPI-CAL early psychosis learning health care network
AU - Ereshefsky, Sabrina
AU - Gemignani, Regina
AU - Savill, Mark
AU - Sanford, Katherine C.
AU - Banks, Lindsay M.
AU - Tryon, Valerie L.
AU - Nye, Kathleen E.
AU - Pierce, Katherine M.
AU - Miles, Madison J.
AU - Miller, Chelyah
AU - Nguyen, Khanh Linh H.
AU - Sharma, Nitasha
AU - Kado-Walton, Merissa
AU - Hakusui, Christopher K.
AU - Smith, Leigh
AU - Padilla, Viviana E.
AU - McNamara, Amanda P.
AU - Safdar, Maliha
AU - Padovani, Andrew J.
AU - Loewy, Rachel L.
AU - Wilcox, Adam B.
AU - Tully, Laura M.
AU - Niendam, Tara A.
N1 - Publisher Copyright:
© 2025
PY - 2025/2
Y1 - 2025/2
N2 - Using data collected in routine care delivery to inform treatment is a key feature of a learning health system (LHS). In this study, we explored the experiences of service users and providers adopting measurement-based care (MBC) in early psychosis (EP) specialty care settings. Qualitative interviews were conducted with 32 providers and 12 service users across 18 programs in the Early Psychosis Intervention Network of California (EPI-CAL). These findings were compared with quantitative data from Beehive, EPI-CAL's data collection and review application. Regarding the clinical benefits of MBC in EP, three broad themes were identified – supporting safety monitoring and response, the assessment process, and delivery of psychotherapy. Powered by Editorial Manager® and ProduXion Manager® from Aries Systems Corporation Outside of direct clinical care, Beehive was considered to support clinical supervision and external reporting, while service users reported data collection facilitated selfreflection. In the quantitative Beehive application data collected from 23 EP programs, high utilization of the safety alert system was evident (349 alerts in total, of which 338 [96.85 %] were resolved at a median of 2.03 days). However, service users' key survey data was only reviewed by assigned providers in 32.22 % (142 of 441) of cases. While providers and service users saw many benefits to Beehive, utilization was highly inconsistent outside of the alert system. Going forward, further consideration of how best to support EP providers to consistently use data in care is necessary to maximize the utility of the LHS approach and positively impact outcomes.
AB - Using data collected in routine care delivery to inform treatment is a key feature of a learning health system (LHS). In this study, we explored the experiences of service users and providers adopting measurement-based care (MBC) in early psychosis (EP) specialty care settings. Qualitative interviews were conducted with 32 providers and 12 service users across 18 programs in the Early Psychosis Intervention Network of California (EPI-CAL). These findings were compared with quantitative data from Beehive, EPI-CAL's data collection and review application. Regarding the clinical benefits of MBC in EP, three broad themes were identified – supporting safety monitoring and response, the assessment process, and delivery of psychotherapy. Powered by Editorial Manager® and ProduXion Manager® from Aries Systems Corporation Outside of direct clinical care, Beehive was considered to support clinical supervision and external reporting, while service users reported data collection facilitated selfreflection. In the quantitative Beehive application data collected from 23 EP programs, high utilization of the safety alert system was evident (349 alerts in total, of which 338 [96.85 %] were resolved at a median of 2.03 days). However, service users' key survey data was only reviewed by assigned providers in 32.22 % (142 of 441) of cases. While providers and service users saw many benefits to Beehive, utilization was highly inconsistent outside of the alert system. Going forward, further consideration of how best to support EP providers to consistently use data in care is necessary to maximize the utility of the LHS approach and positively impact outcomes.
KW - Coordinated specialty care
KW - Early psychosis
KW - eHealth
KW - EPINET
KW - Learning health systems
KW - Measurement-based care
KW - Qualitative data
UR - http://www.scopus.com/inward/record.url?scp=85216532618&partnerID=8YFLogxK
U2 - 10.1016/j.schres.2025.01.018
DO - 10.1016/j.schres.2025.01.018
M3 - Review article
C2 - 39892249
AN - SCOPUS:85216532618
SN - 0920-9964
VL - 276
SP - 157
EP - 166
JO - Schizophrenia research
JF - Schizophrenia research
ER -